Comments on: The Dietary Wheelchair; a broader look at Coeliac and gluten intolerance as dietary disabilities. http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/ Ever the arty Autie Wed, 15 Oct 2008 23:52:56 +0000 http://wordpress.org/?v=2.3.3 By: donna http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-20124 donna Mon, 09 Jun 2008 11:47:28 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-20124 oh I'm so sorry the meal turned out that way. I get terrible cramping from both casein and gluten. The gluten effects me like a bitch pill, a get dark, ranting, can't trust. Casein is much worse for me, shoots me straight through the language centre of my brain understanding language becomes mish mash and trying to sequence speech is a real struggle and the cramping and a headache for the next 3 days. but I bet those who serve the wrong meal wouldn't subject themselves to the same. can say that the brain fog might be dramatically reduced with 2000mg glutamine and allergy impact can be reduced with 1/2 tsp bicarb in warm water (for the cramping from hell) and vit C 2000mg will usually reduce allergy symptoms in an acute case (I'm allergic and intolerant to the casein but just intolerant to the gluten). anyway, congratulate her from me on her ballet exam. I have a pic of me in a ballet costume on youtube (A Gothic Autism Story). :-) Donna *) oh I’m so sorry the meal turned out that way.
I get terrible cramping from both casein and gluten.
The gluten effects me like a bitch pill, a get dark, ranting, can’t trust.
Casein is much worse for me, shoots me straight through the language centre of my brain
understanding language becomes mish mash and trying to sequence speech is a real struggle
and the cramping and a headache for the next 3 days.
but I bet those who serve the wrong meal wouldn’t subject themselves to the same.
can say that the brain fog might be dramatically reduced with 2000mg glutamine
and allergy impact can be reduced with 1/2 tsp bicarb in warm water (for the cramping from hell)
and vit C 2000mg will usually reduce allergy symptoms in an acute case (I’m allergic and intolerant to the casein but just intolerant to the gluten).
anyway, congratulate her from me on her ballet exam.
I have a pic of me in a ballet costume on youtube (A Gothic Autism Story).

:-) Donna *)

]]> By: Leanne http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-20122 Leanne Mon, 09 Jun 2008 11:32:46 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-20122 Oh yes and then there are those who pretend to understand and trick you!. Last week i took my coeliac daughter to a restaurant who have a seperate coeliac menu. It was a big treat after her ballet exam, and a break from her little brother with ASD (yet to find an inclusive restaraunt who will cook 2 min noodles). I tried not to punch the waitress in the head when she announced that she had given my daughter the wrong meal when she was half way through her chicken snitzell. Three years of gluten free and absent brain fog down the drain. We both burst into tears. Oh yes and then there are those who pretend to understand and trick you!. Last week i took my coeliac daughter to a restaurant who have a seperate coeliac menu. It was a big treat after her ballet exam, and a break from her little brother with ASD (yet to find an inclusive restaraunt who will cook 2 min noodles). I tried not to punch the waitress in the head when she announced that she had given my daughter the wrong meal when she was half way through her chicken snitzell. Three years of gluten free and absent brain fog down the drain. We both burst into tears.

]]> By: Donna Williams’ Blog » Blog Archive » Watching Dugong and Poetry. http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-5460 Donna Williams’ Blog » Blog Archive » Watching Dugong and Poetry. Thu, 15 Mar 2007 21:59:59 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-5460 [...] The room was noisy and a chicken coup.  People mingled, glasses in hand, smiley, interested heads bobbing.  My husband Chris and I hugged our chairs in a quiet, rather solitary space outside of the hub-bub.  A waitress came around with canapes.  It sounds like canned apes, but no, in fact its little hors d’oeuvres - kind of said, ‘horses doovers’ - consisting of mini pastry things with artistically stuffed contents, and pretty much all but one shashlik containing dairy and or gluten.  No snackos for me then.   [...] […] The room was noisy and a chicken coup.  People mingled, glasses in hand, smiley, interested heads bobbing.  My husband Chris and I hugged our chairs in a quiet, rather solitary space outside of the hub-bub.  A waitress came around with canapes.  It sounds like canned apes, but no, in fact its little hors d’oeuvres - kind of said, ‘horses doovers’ - consisting of mini pastry things with artistically stuffed contents, and pretty much all but one shashlik containing dairy and or gluten.  No snackos for me then.   […]

]]> By: donna http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3366 donna Sat, 30 Dec 2006 04:41:11 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3366 Yes, you know there are 'arty auties'.... people on the spectrum with the artistic personality trait. http://www.ptypes.com/type_passions.html and of course many on the spectrum who lack this trait and have little interest in, attraction to or insatiable taste for the world of ARTism. Interesting though, a huge percentage of my father's mother's side have coeliac and are also artists, musicians, writers and dyslexia, bipolar, ADHD run on that side with 2 folks diagnosed with Aspergers and another one with autism, so maybe there's links with gut/immune challenges and arty folk, who knows. Arty folk sense the world, maybe this means our bodies gather more stress than those who can live in their intellect, less in their souls.... who knows. Of course, your son is blessed to be an arty autie (ha ha, I'm biased ;-) but those who aren't arty auties may or may not find their own strengths elsewhere. If met some folk whose talent is being so leisurely they expect to do as they please and be waited on like Roman Emperor's. Perhaps that's their strength too. Social diversity is a wild thing and those on the spectrum are a wildly diverse bunch too. :-) Donna Williams *) Yes, you know there are ‘arty auties’…. people on the spectrum with the artistic personality trait.

http://www.ptypes.com/type_passions.html

and of course many on the spectrum who lack this trait and have little interest in, attraction to or insatiable taste for the world of ARTism.

Interesting though, a huge percentage of my father’s mother’s side have coeliac and are also artists, musicians, writers and dyslexia, bipolar, ADHD run on that side with 2 folks diagnosed with Aspergers and another one with autism, so maybe there’s links with gut/immune challenges and arty folk, who knows. Arty folk sense the world, maybe this means our bodies gather more stress than those who can live in their intellect, less in their souls…. who knows.

Of course, your son is blessed to be an arty autie (ha ha, I’m biased ;-) but those who aren’t arty auties may or may not find their own strengths elsewhere. If met some folk whose talent is being so leisurely they expect to do as they please and be waited on like Roman Emperor’s. Perhaps that’s their strength too.

Social diversity is a wild thing and those on the spectrum are a wildly diverse bunch too.

:-) Donna Williams *)

]]> By: Carol http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3365 Carol Sat, 30 Dec 2006 04:27:38 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3365 Hi Donna, As a matter of fact your autism has made you a very creative and brilliant human being. I also notice this creative brilliance in my son. I said once at a forum that I belong to that it wasn't the autism that I hated, it was all the involuntary symtoms that come along with it, and if I can help him overcome these then he can become the best he can possably be! Yes he has head butted me quite a few times and more but is beyond that now. And I do believe he will be an artist like you! Bless your heart! Carol Hi Donna,

As a matter of fact your autism has made you a very creative and brilliant human being. I also notice this creative brilliance in my son. I said once at a forum that I belong to that it wasn’t the autism that I hated, it was all the involuntary symtoms that come along with it, and if I can help him overcome these then he can become the best he can possably be!

Yes he has head butted me quite a few times and more but is beyond that now. And I do believe he will be an artist like you!

Bless your heart!

Carol

]]> By: donna http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3350 donna Thu, 28 Dec 2006 20:30:52 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3350 Hi Carol, thanks for dropping by. We have a wonderful small supermarket in the village I live in. It's run by a man with coeliac and he's very sensitive to the needs of folks in that group as well as those requiring casein free. So we get to do all our shopping there. If only there was a list of such supermarkets! I know there is another one like it in NSW. There's an exhibition each year for folks with coeliac and sometimes those like this man who have supermarkets that make a point to stock the fullest range of CF/GF foods exhibit at this and generally they do casein free too. In the UK there's a wonderful supermarket/health store called The Bran Tub, which I used to live near in Great Malvern. They even know about Salicylates now!!! (I gave them a diet sheet on it and they didn't ignore it, they listened). All the best to your son. I know the diet's tough but for those in this group, (which is not all people on the spectrum) the developmental rewards can be huge. I remember a friend who'd known me since age nine. I hadn't seen her since my teens and she was nervous to meet me again as my behavior had been so unpredictable, incomprehensible, often scary. She said, I just had to take one look at you and I could see you weren't like that anymore. She saw I could control myself and had awareness (monitoring) of my actions/expression which I didn't have before. I'm not a normality monger but being able to stop myself before jumping on people's backs, headbutting them or lunging towards them is a pretty cool thing and being more able to manage compulsive involuntary noises and utterances, especially the self-directed ones that made me seem so nuts, is pretty cool too. I'm not saying I want to be 'less autistic', just more in control of my body so I can now progressively identify with that once quite out of control body. Also big thank you to all those who respect our equality enough to care about minorities because fact is we bring families and friends with us to shop at your stores. :-) Donna Williams *) http://www.donnawilliams.net Hi Carol,

thanks for dropping by.

We have a wonderful small supermarket in the village I live in.
It’s run by a man with coeliac and he’s very sensitive to the needs of folks in that group as well as those requiring casein free.
So we get to do all our shopping there.

If only there was a list of such supermarkets!

I know there is another one like it in NSW.

There’s an exhibition each year for folks with coeliac and sometimes those like this man who have supermarkets that make a point to stock the fullest range of CF/GF foods exhibit at this and generally they do casein free too.

In the UK there’s a wonderful supermarket/health store called The Bran Tub, which I used to live near in Great Malvern. They even know about Salicylates now!!! (I gave them a diet sheet on it and they didn’t ignore it, they listened).

All the best to your son. I know the diet’s tough but for those in this group, (which is not all people on the spectrum) the developmental rewards can be huge.

I remember a friend who’d known me since age nine. I hadn’t seen her since my teens and she was nervous to meet me again as my behavior had been so unpredictable, incomprehensible, often scary. She said, I just had to take one look at you and I could see you weren’t like that anymore.

She saw I could control myself and had awareness (monitoring) of my actions/expression which I didn’t have before.

I’m not a normality monger but being able to stop myself before jumping on people’s backs, headbutting them or lunging towards them is a pretty cool thing and being more able to manage compulsive involuntary noises and utterances, especially the self-directed ones that made me seem so nuts, is pretty cool too.

I’m not saying I want to be ‘less autistic’, just more in control of my body so I can now progressively identify with that once quite out of control body.

Also big thank you to all those who respect our equality enough to care about minorities because fact is we bring families and friends with us to shop at your stores.

:-) Donna Williams *)
http://www.donnawilliams.net

]]> By: Carol http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3344 Carol Thu, 28 Dec 2006 14:21:32 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3344 Hi Donna, You are making a differance in this world whether you realize it or not. Maybe with you speaking as an adult more people will listen. It is definatley a hard task but worth it! My ASD son has improved dramatically. We do need to speak up and get people educated here so it's not so hard. They do have handicapped spots in the parking lot's, so we need our own food section too! I found one store with such a section but it's not big enough. I still have to go to several stores to buy all we need. Another area of need is to eduacate parents of ASD children. One mother said to me when I tried to convince her to try this diet was "We are not going to do any life altering changes right now." But perhaps what she didn't realize was that what they were feeding her child was already life altering. Keep up you grand adventure! I applaud you! Hi Donna,

You are making a differance in this world whether you realize it or not. Maybe with you speaking as an adult more people will listen.

It is definatley a hard task but worth it! My ASD son has improved dramatically. We do need to speak up and get people educated here so it’s not so hard. They do have handicapped spots in the parking lot’s, so we need our own food section too! I found one store with such a section but it’s not big enough. I still have to go to several stores to buy all we need.

Another area of need is to eduacate parents of ASD children.

One mother said to me when I tried to convince her to try this diet was
“We are not going to do any life altering changes right now.”

But perhaps what she didn’t realize was that what they were feeding her child was already life altering.

Keep up you grand adventure! I applaud you!

]]> By: joanne http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3 joanne Fri, 17 Mar 2006 16:50:26 +0000 http://blog.donnawilliams.net/2006/03/14/the-dietary-wheelchair-a-broader-look-at-coeliac-and-gluten-intolerance-as-dietary-disabilities/#comment-3 yup, it is so hard to be on such a strict diet. most of my students with ASD are not on the GF/CF diet. it is difficult to convince their parents to do so. i admire your strength and resistance. keep it up. take care! yup, it is so hard to be on such a strict diet. most of my students with ASD are not on the GF/CF diet. it is difficult to convince their parents to do so. i admire your strength and resistance. keep it up. take care!

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