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	<title>Comments on: Autistic Adventures with Glutamine</title>
	<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/</link>
	<description>Ever the arty Autie</description>
	<pubDate>Sat, 11 Oct 2008 06:18:40 +0000</pubDate>
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		<title>By: donna</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-17794</link>
		<dc:creator>donna</dc:creator>
		<pubDate>Thu, 10 Jan 2008 00:42:16 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-17794</guid>
		<description>I'm sorry about your experiences.

There is a simple zinc taste test health food stores tell to tell if zinc is actually depleted.
Those tasting it without low zinc should find it relatively tasteless.
Those with zinc deficiency have a reaction to it's seemingly metalic taste.
White spots on the fingernails are also a common sign of zinc deficiency.

Evening Primrose Oil is known to cause hyperactivity in some people and contra-indicated in some people with epilepsy.  Omega 3 fish oils by contrast are called Natures Lithium and are not found to cause hyperactivity.

If she's quite ADHD, I think it could be time to take a good look at a good low salicylate diet.  On high salicylates I'm like someone on cocaine.  I am also highly sugar sensitive.  I have to keep both low.

As for Glutamine, if she's manic, it does have anti-depressant properties, so anyone tending toward mania may find its best to start low and run it alongside fish oils as a mood leveller.

Of course feel free to run this buy a naturopath as I'm not one.</description>
		<content:encoded><![CDATA[<p>I&#8217;m sorry about your experiences.</p>
<p>There is a simple zinc taste test health food stores tell to tell if zinc is actually depleted.<br />
Those tasting it without low zinc should find it relatively tasteless.<br />
Those with zinc deficiency have a reaction to it&#8217;s seemingly metalic taste.<br />
White spots on the fingernails are also a common sign of zinc deficiency.</p>
<p>Evening Primrose Oil is known to cause hyperactivity in some people and contra-indicated in some people with epilepsy.  Omega 3 fish oils by contrast are called Natures Lithium and are not found to cause hyperactivity.</p>
<p>If she&#8217;s quite ADHD, I think it could be time to take a good look at a good low salicylate diet.  On high salicylates I&#8217;m like someone on cocaine.  I am also highly sugar sensitive.  I have to keep both low.</p>
<p>As for Glutamine, if she&#8217;s manic, it does have anti-depressant properties, so anyone tending toward mania may find its best to start low and run it alongside fish oils as a mood leveller.</p>
<p>Of course feel free to run this buy a naturopath as I&#8217;m not one.</p>
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		<title>By: Amanda</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-17793</link>
		<dc:creator>Amanda</dc:creator>
		<pubDate>Thu, 10 Jan 2008 00:22:00 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-17793</guid>
		<description>Hi Donna
My experience with biomed interventions has been varied - dietary changes have helped, but a GP autism "specialist" and his carte blanche approach (liquid zinc and evening primrose oil) sent my daughter off her trolley after only four days on the supplements and it took two weeks to calm her down. He even recommended chelation! He didn't test her for any deficiencies before putting her on zinc. I now treat any recommendations with extreme suspicion. That being said, I am interested in the glutamine - my daughter is high functioning with ADHD symptoms that cause her to become extremely hyperactive, sometimes out of control giggling for hours on end. I am interested in the glutamine as a mood stabilizer, as our sensory diet and behavioural management (positive behaviour support) don't seem to be helping her to calm down. Nothing gets through to her when she is on this "high".</description>
		<content:encoded><![CDATA[<p>Hi Donna<br />
My experience with biomed interventions has been varied - dietary changes have helped, but a GP autism &#8220;specialist&#8221; and his carte blanche approach (liquid zinc and evening primrose oil) sent my daughter off her trolley after only four days on the supplements and it took two weeks to calm her down. He even recommended chelation! He didn&#8217;t test her for any deficiencies before putting her on zinc. I now treat any recommendations with extreme suspicion. That being said, I am interested in the glutamine - my daughter is high functioning with ADHD symptoms that cause her to become extremely hyperactive, sometimes out of control giggling for hours on end. I am interested in the glutamine as a mood stabilizer, as our sensory diet and behavioural management (positive behaviour support) don&#8217;t seem to be helping her to calm down. Nothing gets through to her when she is on this &#8220;high&#8221;.</p>
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		<title>By: Lizzette</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8147</link>
		<dc:creator>Lizzette</dc:creator>
		<pubDate>Wed, 23 May 2007 02:59:34 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8147</guid>
		<description>I would love to have you as our consultant!  I didn't even know we could.  There's a website that I would like you to take a look at regarding MB12 and the doctor who came up with the protocol.  IN this site you can look at Autistic kids who have lost their diagnosis due to MB12.  It's very interesting and I thought you might get a kick out of it.

oxoxo
Lizzette
P.S  I'm waiting for a paycheck and as soon as I do I will consult with you.</description>
		<content:encoded><![CDATA[<p>I would love to have you as our consultant!  I didn&#8217;t even know we could.  There&#8217;s a website that I would like you to take a look at regarding MB12 and the doctor who came up with the protocol.  IN this site you can look at Autistic kids who have lost their diagnosis due to MB12.  It&#8217;s very interesting and I thought you might get a kick out of it.</p>
<p>oxoxo<br />
Lizzette<br />
P.S  I&#8217;m waiting for a paycheck and as soon as I do I will consult with you.</p>
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		<title>By: donna</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8111</link>
		<dc:creator>donna</dc:creator>
		<pubDate>Tue, 22 May 2007 03:43:22 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8111</guid>
		<description>Hi Lizette,

I'm not going to start consulting here on the blog as consulting is something I do separately and professionally in booked time (I've been a consultant for 12 years and have worked with over 600 people on the spectrum).  If you're interested in a consultation to cover some of these bases you can visit www.donnawilliams.net and go to 'autism' then 'consultancy' and you'll find my email consulting service.  I'm not a doctor, nor naturopath though I have 20 years of involvement with practitioners in natural medicine.  I'm a qualified teacher and you'll read there what I do as a consultant.  Given its a year since the B12 shots, I doubt that what's happening at present is a direct result of those.  I would certainly work with you to do my best to get to the bottom of what is and isn't going on and direct you to those best able to work with specific issues as well as train you where possible in environmental strategies which may help.

All the best in any case.

:-) Donna *)</description>
		<content:encoded><![CDATA[<p>Hi Lizette,</p>
<p>I&#8217;m not going to start consulting here on the blog as consulting is something I do separately and professionally in booked time (I&#8217;ve been a consultant for 12 years and have worked with over 600 people on the spectrum).  If you&#8217;re interested in a consultation to cover some of these bases you can visit <a href="http://www.donnawilliams.net" rel="nofollow">http://www.donnawilliams.net</a> and go to &#8216;autism&#8217; then &#8216;consultancy&#8217; and you&#8217;ll find my email consulting service.  I&#8217;m not a doctor, nor naturopath though I have 20 years of involvement with practitioners in natural medicine.  I&#8217;m a qualified teacher and you&#8217;ll read there what I do as a consultant.  Given its a year since the B12 shots, I doubt that what&#8217;s happening at present is a direct result of those.  I would certainly work with you to do my best to get to the bottom of what is and isn&#8217;t going on and direct you to those best able to work with specific issues as well as train you where possible in environmental strategies which may help.</p>
<p>All the best in any case.</p>
<p> <img src='http://blog.donnawilliams.net/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> Donna *)</p>
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		<title>By: DandyLyon</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8110</link>
		<dc:creator>DandyLyon</dc:creator>
		<pubDate>Tue, 22 May 2007 03:32:28 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8110</guid>
		<description>If she's covering her ears, it may also be that her aural sensitivity has increased, and she's having trouble filtering out unwanted excess sounds.

I don't know if I'd be considered to have enough autie/aspie traits to be "diagnosable", but my uncle and brother are both on the spectrum, ad the rest of my family have a sprinkling of "traits". 

I get trouble with sensory overload when I'm feeling stressed. Especially with regards sound, crowds and smells. I tend to either "shut down" sometimes to the point of being unresponsive and non-verbal, other times I just feel like screaming and striking out.

If she's covering her ears AND burying herself in blankets, combined with the other things you mention, it sounds like she's overwhelmed to me. With regards the potty-training, ANY child can regress on that one when they're under heightened stress.</description>
		<content:encoded><![CDATA[<p>If she&#8217;s covering her ears, it may also be that her aural sensitivity has increased, and she&#8217;s having trouble filtering out unwanted excess sounds.</p>
<p>I don&#8217;t know if I&#8217;d be considered to have enough autie/aspie traits to be &#8220;diagnosable&#8221;, but my uncle and brother are both on the spectrum, ad the rest of my family have a sprinkling of &#8220;traits&#8221;. </p>
<p>I get trouble with sensory overload when I&#8217;m feeling stressed. Especially with regards sound, crowds and smells. I tend to either &#8220;shut down&#8221; sometimes to the point of being unresponsive and non-verbal, other times I just feel like screaming and striking out.</p>
<p>If she&#8217;s covering her ears AND burying herself in blankets, combined with the other things you mention, it sounds like she&#8217;s overwhelmed to me. With regards the potty-training, ANY child can regress on that one when they&#8217;re under heightened stress.</p>
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		<title>By: Lizzette</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8109</link>
		<dc:creator>Lizzette</dc:creator>
		<pubDate>Tue, 22 May 2007 02:36:37 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8109</guid>
		<description>Donna you say:

Crying for no reason in the context of sensory hypersensitivity and what may be ‘verbal tics’ within Tourettes (also see ‘vocal tics’) may indicate there’s not only a co-morbid compulsive disorder broken out for the moment, but a mood disorder may have onset as well. These two could trigger if brain chemistry had recently become highly imbalanced, and may iron out if it rebalances.

HOW do you rebalance?  I'm desperate here!  It's been a more than a month since I last gave her the shots.  I also just found out that I was told to give her too much of MB12.
 
Her DAN is clueless.  I wish I would of never taken her there.

Thank you sooooo much for your responses.  I feel previlleged.

Elizabeth</description>
		<content:encoded><![CDATA[<p>Donna you say:</p>
<p>Crying for no reason in the context of sensory hypersensitivity and what may be ‘verbal tics’ within Tourettes (also see ‘vocal tics’) may indicate there’s not only a co-morbid compulsive disorder broken out for the moment, but a mood disorder may have onset as well. These two could trigger if brain chemistry had recently become highly imbalanced, and may iron out if it rebalances.</p>
<p>HOW do you rebalance?  I&#8217;m desperate here!  It&#8217;s been a more than a month since I last gave her the shots.  I also just found out that I was told to give her too much of MB12.</p>
<p>Her DAN is clueless.  I wish I would of never taken her there.</p>
<p>Thank you sooooo much for your responses.  I feel previlleged.</p>
<p>Elizabeth</p>
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		<title>By: donna</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8064</link>
		<dc:creator>donna</dc:creator>
		<pubDate>Sun, 20 May 2007 12:39:08 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8064</guid>
		<description>It worries me that a 5% incidence of negative reactions is considered worth risking when the test for functional B12 deficiency is simple and non-invasive - its a urine analysis for Methylmalonic Acid levels (which indicate an inability to metabolise B12).  If we said that only 5% of children had negative reactions to vaccination would we equally be expected to accept that?  Hmmmm.

As for what you're describing.  Covering her ears as she is may be due to the onset of Tinnitus which can be related to B vitamin deficiencies, perhaps particularly if excess and unrequited B12 triggered a B6 deficiency.  I'd suggest a full nutrient analysis.

As for 'vocabulary stimming' have a look at 'Verbal tics' as part of Tourette's.  Tourette's can be triggered by brain irritation and seem to be reduced by things like B6 - again if excess B12 triggered a B6 deficiency it'd be worth finding out.  Certainly tics come out under heightened stress.

Crying for no reason in the context of sensory hypersensitivity and what may be 'verbal tics' within Tourettes (also see 'vocal tics') may indicate there's not only a co-morbid compulsive disorder broken out for the moment, but a mood disorder may have onset as well.  These two could trigger if brain chemistry had recently become highly imbalanced, and may iron out if it rebalances.

Enuresis is often associated with Salicylate Intolerance but could also happen in heightened stress and overload.  Lack of B6 could result in poor processing and heightened stress increasing overload and excess B12 can cause subsequent deficiencies in other B vitamins.  I'd get the naturopath to do what the Dan doctor seems not to have done and get the nutrient levels tested.

Alternatively, she may have 'woken up' and be struggling with the jolt and overload associated with that.</description>
		<content:encoded><![CDATA[<p>It worries me that a 5% incidence of negative reactions is considered worth risking when the test for functional B12 deficiency is simple and non-invasive - its a urine analysis for Methylmalonic Acid levels (which indicate an inability to metabolise B12).  If we said that only 5% of children had negative reactions to vaccination would we equally be expected to accept that?  Hmmmm.</p>
<p>As for what you&#8217;re describing.  Covering her ears as she is may be due to the onset of Tinnitus which can be related to B vitamin deficiencies, perhaps particularly if excess and unrequited B12 triggered a B6 deficiency.  I&#8217;d suggest a full nutrient analysis.</p>
<p>As for &#8216;vocabulary stimming&#8217; have a look at &#8216;Verbal tics&#8217; as part of Tourette&#8217;s.  Tourette&#8217;s can be triggered by brain irritation and seem to be reduced by things like B6 - again if excess B12 triggered a B6 deficiency it&#8217;d be worth finding out.  Certainly tics come out under heightened stress.</p>
<p>Crying for no reason in the context of sensory hypersensitivity and what may be &#8216;verbal tics&#8217; within Tourettes (also see &#8216;vocal tics&#8217;) may indicate there&#8217;s not only a co-morbid compulsive disorder broken out for the moment, but a mood disorder may have onset as well.  These two could trigger if brain chemistry had recently become highly imbalanced, and may iron out if it rebalances.</p>
<p>Enuresis is often associated with Salicylate Intolerance but could also happen in heightened stress and overload.  Lack of B6 could result in poor processing and heightened stress increasing overload and excess B12 can cause subsequent deficiencies in other B vitamins.  I&#8217;d get the naturopath to do what the Dan doctor seems not to have done and get the nutrient levels tested.</p>
<p>Alternatively, she may have &#8216;woken up&#8217; and be struggling with the jolt and overload associated with that.</p>
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		<title>By: Lizzette</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8005</link>
		<dc:creator>Lizzette</dc:creator>
		<pubDate>Sat, 19 May 2007 00:18:45 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-8005</guid>
		<description>You will be surprised of the propaganda DAN doctors are using for the use of MB12.
They swear by it!  They claim that only 5% of the children placed on these shots have a negative reaction.  

Well my child has had a negative reaction and they call it a special case.  Meanwhile there has been NO studies of what to do when this happens and how long it will last.

My daughter went from NO headbanging to headbanging the 1st week after introducing the shots, her language did explode, but she is now covering her ears and buring herself under covers and pillows.  She has vocabulary stiming, and cries for no apparent reason.
She has potty accident after being potty trained for two years with NO accidents.  She's now back to pull-ups.

I don't know when she's having a tantrum or when she's having a meltdown.

It brakes my heart to see her this way and No one will help me.

Anywords of encouragement will be greatly appreciated.

Nobody, Nowhere was the 1st book I read after her diagnosis followed by Somebody, Somewhere.  NOw I'm reading "Like Color to the Blind".  

I can't wait for the movie to come out!  When will it happen????

Lizzette in Southern California.</description>
		<content:encoded><![CDATA[<p>You will be surprised of the propaganda DAN doctors are using for the use of MB12.<br />
They swear by it!  They claim that only 5% of the children placed on these shots have a negative reaction.  </p>
<p>Well my child has had a negative reaction and they call it a special case.  Meanwhile there has been NO studies of what to do when this happens and how long it will last.</p>
<p>My daughter went from NO headbanging to headbanging the 1st week after introducing the shots, her language did explode, but she is now covering her ears and buring herself under covers and pillows.  She has vocabulary stiming, and cries for no apparent reason.<br />
She has potty accident after being potty trained for two years with NO accidents.  She&#8217;s now back to pull-ups.</p>
<p>I don&#8217;t know when she&#8217;s having a tantrum or when she&#8217;s having a meltdown.</p>
<p>It brakes my heart to see her this way and No one will help me.</p>
<p>Anywords of encouragement will be greatly appreciated.</p>
<p>Nobody, Nowhere was the 1st book I read after her diagnosis followed by Somebody, Somewhere.  NOw I&#8217;m reading &#8220;Like Color to the Blind&#8221;.  </p>
<p>I can&#8217;t wait for the movie to come out!  When will it happen????</p>
<p>Lizzette in Southern California.</p>
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		<title>By: donna</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-7935</link>
		<dc:creator>donna</dc:creator>
		<pubDate>Fri, 18 May 2007 03:18:41 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-7935</guid>
		<description>Yes I have, and to my great horror I've met families who are getting these shots for their children who have not been tested as having B12 deficiency.  B12 and B6 must be balanced.  An excess in one can trigger a deficiency in the other etc.  It's something that should be backed up by testing not given out wholesale based on a shared label.  

I have a functional B12 deficiency, but many many with autism do not.

I choose to take oral B12 1000-2000mcg which is a massive oral dose so because I can't metabolise it well I end up with an uptake of what dietarily would amount to a normal level.  I do this to avoid shots and so far my B12 levels are normal this way but otherwise deficient.

Never underestimate either the impact on distress, alienation and chronic self protection responses of an infant repeatedly marched into a strange smelling, clinical environment to have needles stuck into them.  Adding trauma to autism is never a good mix, especially if a child already struggles to trust because of challenged processing and sensory perception.  

Sure, its essential WHEN its essential and for kids with immune deficiency and marked functional B12 deficiency that may be the case, so you make it as home like and humanising atmosphere as you can to get shots.  But this one-size-fits all rubbish drives me nuts about the field.  Its laziness, money grabbing and desperation often based on scare mongering and false or partial information. 

Strategies to help those with autism should be based on researching what's going on with EACH person, or if one wants to TRIAL something said to work with 'autism' then a TRIAL is a trial, not a life long contract.  If it doesn't help after 30-60 days, do something else.

For a good look at the incredibly diversity among forms of autism and their hugely varying underlying causes and the approaches and treatments addressing each, have a look at The Jumbled Jigsaw.

:-) Donna Williams
www.donnawilliams.net</description>
		<content:encoded><![CDATA[<p>Yes I have, and to my great horror I&#8217;ve met families who are getting these shots for their children who have not been tested as having B12 deficiency.  B12 and B6 must be balanced.  An excess in one can trigger a deficiency in the other etc.  It&#8217;s something that should be backed up by testing not given out wholesale based on a shared label.  </p>
<p>I have a functional B12 deficiency, but many many with autism do not.</p>
<p>I choose to take oral B12 1000-2000mcg which is a massive oral dose so because I can&#8217;t metabolise it well I end up with an uptake of what dietarily would amount to a normal level.  I do this to avoid shots and so far my B12 levels are normal this way but otherwise deficient.</p>
<p>Never underestimate either the impact on distress, alienation and chronic self protection responses of an infant repeatedly marched into a strange smelling, clinical environment to have needles stuck into them.  Adding trauma to autism is never a good mix, especially if a child already struggles to trust because of challenged processing and sensory perception.  </p>
<p>Sure, its essential WHEN its essential and for kids with immune deficiency and marked functional B12 deficiency that may be the case, so you make it as home like and humanising atmosphere as you can to get shots.  But this one-size-fits all rubbish drives me nuts about the field.  Its laziness, money grabbing and desperation often based on scare mongering and false or partial information. </p>
<p>Strategies to help those with autism should be based on researching what&#8217;s going on with EACH person, or if one wants to TRIAL something said to work with &#8216;autism&#8217; then a TRIAL is a trial, not a life long contract.  If it doesn&#8217;t help after 30-60 days, do something else.</p>
<p>For a good look at the incredibly diversity among forms of autism and their hugely varying underlying causes and the approaches and treatments addressing each, have a look at The Jumbled Jigsaw.</p>
<p> <img src='http://blog.donnawilliams.net/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /> Donna Williams<br />
<a href="http://www.donnawilliams.net" rel="nofollow">http://www.donnawilliams.net</a></p>
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		<title>By: Lizzette</title>
		<link>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-7930</link>
		<dc:creator>Lizzette</dc:creator>
		<pubDate>Fri, 18 May 2007 01:46:28 +0000</pubDate>
		<guid>http://blog.donnawilliams.net/2007/05/10/adventures-with-glutamine/#comment-7930</guid>
		<description>Greetings Donna,

I have a little girl who's 4 yrs old and she was diagnosed at 3 years of age.  I recently gave her MB12 shots and now she's acting really austistic.  You might say  she has regressed upon starting the shots.  Have you heard of them?

Thankj you
E</description>
		<content:encoded><![CDATA[<p>Greetings Donna,</p>
<p>I have a little girl who&#8217;s 4 yrs old and she was diagnosed at 3 years of age.  I recently gave her MB12 shots and now she&#8217;s acting really austistic.  You might say  she has regressed upon starting the shots.  Have you heard of them?</p>
<p>Thankj you<br />
E</p>
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