‘Facing’ The World, and Skin Cancer
I believe there are ‘boy mothers’ and ‘girl mothers’. The ‘boy mothers’ can relate easily to boys without feeling of threat or competition, without jealousy. The ‘girl mothers’ like the emotional sharing thing of having daughters and find the boys too self owning, too distant, too practical and logical. Some are all rounders and relate equally to both genders. Some find they have a boy who is more like a girl or a girl who is more like a boy. Anyway, mothers are people and they’re all different and we get what we get, so do they.
I had a ‘boy mother’ but even if I’d had a ‘girl mother’ then as someone who was afraid of entanglement and intimacy, very tentative with real felt trust, I’d never have fitted a girl mother either. But with a ‘boy mother’, especially if there are any pathological jealousy dramas in the house, being a daughter never sits right and its easy to grow up feeling unworthy and ugly, Autistic or not. I’m one of those people.
It took me a long time to feel worthy, both as an Autie in a non-Autie world, but also as a girl of a ‘boy mother’ and later as a female, as a woman, as a sexual being in my 30s, with my phases of asexual, straight, gay, bisexual. As a child I loved my reflection as the only person who understood and accepted me completely but as an adult, now aware of the media driven pursuit of ‘beauty’, ‘perfection’, ‘agelessness’, and progressively well known and referred to by strangers as ‘pretty’, I had in fact intense ‘ugly days’ where I couldn’t stand to look at my face as it made me cry.
I never thought of it as Body Dysmorphic Disorder (though I have a relative who would come close to that and don’t we all have hints, even episodes of many things). I saw it more as part of a mood bender crossed with PTSD ( Post Traumatic Stress Disorder ) that would have its ‘episodes’ of ‘ mental Nazis ‘ in which I was persecuted from within, silently, in the solitude of what was often a comfortable Social Phobia (because I am so creative being alone its more comfortable for me than many).
But fact is, I liked my face, my dimples, my smile, my light colored eyes, my curly hair and also my nose.
I have a fabulous nose, one of those funny rounded noses that look cute on cartoons. Then one day I got a pimple on the left nostril and it didn’t pop, it bled, and it didn’t go away. I waited for four months, after all, it was nothing to worry about, it wasn’t like it was a mole or dark brown or anything. Finally, the tiny crater in it got bigger and bled every day so I went to the doctor feeling very silly and he put my nose to sleep with a needle and took a biopsy of this spot, which means he cut a small sample away. The results came back, it was a nodular Basal Cell cancer. Off to the plastic surgeon and it was decided it would risk eating into my facial muscles and I could lose my smile so it needed to be cut out as it was a nodular one which means its bigger underneath than on the surface. But it was nothing to worry too much about. Basal Cell cancers don’t kill people, they just eat their faces and cause disfigurement and plastic surgeons do wonderful work.
I went home and looked at my face, my very pale freckled skin and my sad nose that wasn’t happy like it used to be. I was told I’d have one smaller nostril after surgery and that meant a lack of Symmetry. That would be a challenge to someone with OCD and a fixation on balance to panic proportions. Something else to work on. And would I want to go out even less I pondered in relation to Social Phobia I already danced with on a daily, weekly basis? And would those ugly days be even worse when I felt my new face was no longer photo worth for journalists who asked for a picture or my husband Chris who would want one to remember ‘me’? I came to terms with it all, remembering the Buddhists believe that pain comes from attachment to things that are transient, like pretty noses. Besides, it was just one area and it’d only be seen if I was front on. Then I found another spot, more subtle. It had been hiding under the frame of my glasses on the bridge of my nose and I thought they’d caused it. So I left my glasses off for a week and walked about grumpy in a fragmented 2D world without depth. And that spot didn’t go. So I resigned myself to the fact I may be like my childhood friend who has ended up with six so far, that those of us with the genetics to be prone to these often get more than one, and that it was ok, and that I would still be me, that the me is who I am THROUGH my face, not my face itself.
It is hard to be a public person and to be one with skin cancer is no easier. But if being a public person with skin cancer allows me to declare that I am as attractive and loveable no matter how much my face changes for whatever reason that it changes, then let this be a blessing, not a curse. Nobody dies of Basal Cell cancers. Dignity can die, self confidence can die, but that is not a cancer of the skin, its a cancer of the mind, the soul, and it is treatable if you want it to be, if you don’t make mountains out of molehills, of Basal Cell cancers for that matter. If you close those women’s magazines that build only self hatred and judgemental voyeurism, if you see real, flawed, beautiful people all around you in the street, not see the world through a TV screen of flawless 20 somethings, then this cancer of the mind is treatable. And flaws are part of the balance of life which draw our attention to other things, things that matter more and what we cannot change, we can adapt to, even grow to appreciate.
For information on Basal Cell cancer…
The challenges of my nose make me realise how much more important my smile is. If ever I lost that though, I’d still draw you one 🙂
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One year on I the handywork of the plastic surgeon is barely noticeable.
I’ve got one nostril smaller than the other but who knows unless they’re underneath my nose and anyone hanging out looking into my nostrils isn’t going to be an everyday person so its not worth worrying about every day 🙂
I have a scar across one of my nostrils where ‘the beast’ was removed. Looks kind of like a nose piercing that went wrong but so far nobody has stared or asked. I’m starting to consider it just, part of the way experience maps itself on my body and just let it be.One of the great things is, fingers crossed and touch wood, the Body Dysmorphia stuff about my face seems to have completely disappeared. It’s as though, by having a real disfigurement, however small, I’ve stopped imagining or fearing ugliness. That was almost worth getting the scar!
… Donna Williams *)
Hi Donna~ Just diagnoised with basal on the bridge under my eyeglasses. Might be catching this early, as it appeared in Jan. I ignored it because my life was insane, my house had flooded two foot of water on New Years. So overwhelmed with diasaster, I put off my dr. appts. Now I’m scheduled for surgery in two weeks. I didn’t suspect too much as ‘they’ put it out there that brunettes, dark eyed people are less likely to get it. I took inventory of my sun life and realized I’m more outdoor than most females I know, also travelled to many tropical places… The dificulty isn’t as much about disfigurement but more on learning to enjoying living indoors, which a cagey person like me finds sufficating. Ive been feeling like a vampire, hiding from the sun. My glorious garden looks like a trap, what was my daily dose of calming nature now feels unhealthy. Realizing I’m a shade plant -not a sun loving one, in need of transplant to a cooler spot- depressing. Ran out and bought hats sunglasses, another change in image Im trying to learn to enjoy. Glad to have read your writing, great perspective on life beauty…… thankyou for sharing strenght. -Karen
Hi Karen,
I know what you’re going through. I’m a DO-er so I love space and being physical, my relationship to the garden and plants is really important to me and I like to grow food. I don’t go for hats or suncream (nudity is more my thing if I wasn’t near neighbours) and the warmth of sun and light give me happiness. So I know the vampire feeling of now suddenly being scared of the sun and having to feel you can’t forget time and stay out there.
And its not the one basal cell cancer that haunts me, its the knowledge that one gets one and can ‘collect the set’. But think shade cloth, pergola, fernery and maybe its not so bad. Make an oasis outside. Get hats that are ‘you’ and consider these an extension of yourself, not a hiding of that self.
As for the basal cells cancer on the brige of your nose, the one on my nostril healed well. I’m self conscious of it but we’ve ‘made friends’. I’m allowed ‘battle scars’. It looks like I had a bad nose piercing but taking a section from a curvy nostril is very hard to leave without change. Still, better to still have a nostril there than none at all! And the bridge will likely heal with little or no scar as its flatter than the cartillage stuff of a nostril.
As for indoors, maybe its time to get some UV skylights so you feel outdoors whilst inside and some blue/turquoise colored walls with sponged cloud effects… I did this to a room once and it was gorgeous… with mirrors to reflect the light from windows. Have an experiment with it.
I’m a writer, artist, composer so indoors has lots of alternative ‘doing’ for me. So explore and find your inner ‘homebody’.
I determined no self judgement for 3 mths after surgery. It was a great healthy decision. After 3 mths the healing was great and the adjustment minimal.
Nice of you to drop by. If you feel like letting off steam in your relationship with Mr Basal Be Gone, and after surgery, drop by.
Warmly,
Donna *)
I’m definitley worried about skin cancer as I grew up in Australia in the 70s when using sunscreen was pretty much unheard of and spending every day at the beach was the thing to do.
Andrea, I worried about skin cancer as well but I try not to be much time under the direct sun rays. I think this is the best way to save your skin, because even if you use sunscreen cream this is can’t guarantee 100% protection.