Goodbye to fluorescent bulbs – Here’s looking at you kid.
With the new government proposal to phase out incandescent light bulbs, what about those on the autism spectrum with the visual perceptual processing challenge of Scotopic Sensitivity Syndrome who struggle to concentrate, read and learn under fluorescent lighting? I always squinted in bright light and under fluorescent lights. There were some fluorescent lit rooms I couldn’t stay seated in, others I would struggle to listen in and some I just plain wouldn’t enter.
In the book Like Colour To The Blind I wrote about my first experiences with tinted lenses for Scotopic Sensitivity Syndrome. Essentially we all process light frequencies differently and some of us struggle to process certain light frequencies more than other people do. The result can be that its hard to read if the brightness of the page seems to pulsate, making the words floaty or seem to move or swim about on the page. So, needless to say, I never became much of a reader even though I’m a prolific writer.
But the fluorescent lights did something else too. They made people’s faces seem ‘in bits’, like trying to read when in a moving car, looking at faces made me feel edgy, queasy and visual chaos seemed far more messy than in dim light.
Tinted lenses, omega 3s, Glutamine and low salicylate diet helped solve much of that and was a better alternative than asking everyone to replace their fluoros with incandescent wall lights, lamps or natural light. But I still turned them off where possible.
As a consultant I advised teachers to seat children with these problems under a strip of ceiling without the fluorescent lighting and progressive studies have backed up what I wrote of in Autism; An Inside Out Approach and The Jumbled Jigsaw about the impact of turning off fluorescent lights on behavior management, attention span and learning.
But now the is going to bring the fluorescent bulbs home as well.
I say keep the sunglasses on standby, the peaked cap at the read, bye those standing lamps and frosted, scalloped wall light fittings, those uplighter shades, those yellow deflectors that add the missing yellow back into the color spectrum which is missing from fluorescent lights.
Do I want to argue for incandescent lights for people on the autistic spectrum with these visual perceptual challenges? I think they’ll suffer far more from the impact of global warming. But I do think we need to respect the needs of those with visual perceptual disabilities and the impact that overwhelming and fragmenting their senses will have on slowing their information processing, contributing to loss of information processing, inattention and behavior management challenges.
You knew the job was dangerous when you took it Super Chicken.
ps: a reader sent this
In case you’re interested, I’ve found some flicker free natural spectrum light bulbs, low energy and the best I’ve found yet. Called biobulb and made by Ecozone www.ecozone.co.uk then click on biobulb link.
FURTHER UPDATE
Well, I bought the ‘warm white’ fluoros and was AMAZED.
These didn’t effect me anything like the old fluors… that sort of piercing whiter and than white cackola that’s in schools and hospitals. I was even further amazed when, unlike how I get by with even minimal incandescent lighting, here I was, happy to leave these WARM WHITE fluoros on…. unheard of. Anyway, I still have Scotopic Sensitivity, still can’t see cohesively or sit without agitation under the old style fluoros without tinted lenses but I can under these new ones. Well, wonders never cease to amaze.
🙂 Donna
Hi Donna,
I’ve just read your fluorescent lights posting and sometimes, a certain superstore’s array of fluorescent tubes would dazzle me. At that point, I would end up entering the store, only to return straight back within a matter of seconds.
Much as I admire this small step towards energy conservation and saving the planet, I still think they should also concentrate on using solar, wind and wave energy more.
Could fibre optic lighting be a good substitute for the traditional light bulb or even fluorescent tubes?
Stuart.
Hi Donna , my husband and I have noticed the kids really struggle with fluorecent lights. There are some stores we just can’t go into there are so many lights. My little girl ended up on the floor crying it was just too much for her in one store. We got rid of all the fluro lights in our home and they are much calmer for it. When we go shopping I put baseball caps and sunglasses(when I can find the glasses we are always losing those!). I have mentioned this at their autism specific school here in Melbourne (they use fluros) and they say it doesn’t make any difference.I personally think my sons behavior is more unfocused at school- its hard to judge as we aren’t allowedto watch a class , but just from visiting for birthdays… How do they know when they haven’t tried the rooms with incandecent bulbs? They are now building a purpose built autism school. When I suggested no fluros for the new school the principal just rolled her eyes. I don’t know why this issue is not taken seriously by the school when I have heard adult Autties mention this at lectures, being an issue for them. I think I may have read it in one of your books and realised what the “trigger ” was to the erratic behavior in some stores we went into. From a very early age there was a particular Spotlight store my son would cry and cry in every time we went even though I tried not to stay very long. It had fluros all over the ceilings… Liz
Hi Liz,
sadly these teachers have read nothing on the research showing a significant percentage of people with ASD have visual perceptual disorders, mostly Scotopic Sensitivity Syndrome, which is exacerbated by white fluoros.
The MINND Foundation international conference recently as SSS included in the list of common co-occurring conditions in ASD. Of course I’ve written of SSS in Like Colour To The Blind, in Autism; An Inside Out Approach and in The Jumbled Jigsaw, but if these teachers insist on being ‘old school’ and unable to think holistically, then that’s a disability we can do little about I’m afraid.
It’s true that not ALL people with ASD are affected by lighting but its a real shame teacher’s would compromise those who do when altering lighting would do no harm to those without the issue.
Also if they are overstimulating a child in other ways whilst testing for lighting or testing them after they’ve had colored cordial or other dietary nasties, they won’t see an effect of altering lighting because too many other factors are not controlled for.
But as for whether they are experts in visual perceptual disorders able to test for what they are presuming isn’t there, I strongly doubt it. They sound as if they wanted to dismiss it so did little to control for other variables and test properly in order to find WHICH children had these issues, presuming instead that because it wasn’t all then it couldn’t have been any. How convenient. But if nothing else they might be encouraged to change their fluoros to the ‘warm white’.
The BPI autism test range of tinted lenses includes two common sunglasses tints – Sahara and Aviator Grey – you can find more info on the BPI test range for autism on http://www.donnawilliams.net then go to ‘autism’ then to ‘articles’ then to ‘sensory’ and you’ll see the article titled ‘tinted lenses’.
All the best.
🙂 Donna Williams *)
http://www.donnawilliams.net
Hi Donna,
I also have scotopic sensitivity syndrome. I developed it along with chemical sensitivity after being exposed to new carpeting that I was sensitive to. I could hardly read at all and saw several doctors, none of whom knew what I was talking about or who could help me. I was in a neurology training program and had enormous difficulty due to having so much trouble reading. I finally figured out what was wrong when there was a news journalism program on TV about this disorder, and I got colored lenses. They helped incredibly. Eventually I discovered that the chemicals in the carpeting were making me ill and these days, now that I no longer have that exposure, no longer need the glasses.
I have read several of your books and admire your talent and perdceptiveness.
Dear Donna,
Do you have problems with foods containing histamines? Thanks so much for your response.
not sure re histamines.
grapefruit, peppermint, vegemite, red wine – all make me sneeze
they’re also all high in phenols and salicylates, which I’m allergic to and can’t detox well from.
so not sure if its histamines
I was always a very allergic person.
I take high dose timed-release non-acid vit C which helps
I was first put on that (and zinc and multivitamin-minerals)
at age 10 in 1973.
very innovative at the time.
🙂
Hi Donna! I just want to thank you for continuing to speak out against lighting conditions that are disruptive to at least 20% of the population. Are you interested in getting involved in an advocacy group that would take this message to the next level: researchers and policy-makers? I strongly believe the time is right. The research community is finally beginning to become more actively involved.
Sincerely,
Rhonda Stone
Author, The Light Barrier, St. Martin’s Press, 2002/Griffen 2003
RSStone74@aol.com
thanks for the confidence Rhonda.
have you been to my website http://www.donnawilliams.net
you’ll see I’m so busy.
but do feel free to quote me.
and I have written extensively about the relationship between fluorescent bulbs and visual perception in Like Colour To The Blind as well as Autism; An Inside Out Approach and The Jumbled Jigsaw if you feel like quoting from any of those. There’s also mention in Somebody Somewhere.
All the best,
🙂 Donna *)
Donna,
I am a teacher. While I never realized the connection between learning, lighting, and autism I did see the connection (or disconnection) between flourescent lighting and restless learning in my classroom. I have attempted to bring in my own lamps but have been asked to remove them from my room (supposed fire hazard). Is there anything you could suggest that I do to alter my flourescent bulbs in my ceiling so that I am at least minimizing the blast of light? Is there some sort of celophane plastic that is colored that I could stretch over the lights in the ceiling? Thanks for any suggestions…
what I did was at the schools where I was an autism consultant, I’d identify the kids with behaviours ndicative of visual perceptual disorders and recommend they be seated in the row closest to natural light and underneath a row of lights which could be turned off.
There’s also the possibility of standard brown or grey sunglasses available to those who find the fluorescent lights make them distracted, tetchy, agitated, restless during a lesson.
And advice the home to check salicylate intake on those with significant visual perceptual and attentional problems and ensure they got adequate levels of omega 3s in the diet.
you can find more info on such issues in the books:
Like Colour To The Blind,
Autism; An Inside Out Approach,
The Jumbled Jigsaw.
🙂 Donna Williams *)
Donna,
I find this all very interesting and I congratulate you! These are things that people need to know about. I canrecall an ex-girlfriend’s child going berserk at Target when he was much younger – actually at around the time his autism was diagnosed – the “layperson” has no idea. However, having said that, I should say that whilst we are told we SHOULD have an idea, the parents of these autistic children need to understand that the “lay parent” cannot be expected to know or understand, yet, people such as teachers and shop owners, etc, I feel they should ALL be made aware of such things as these lighting issues, foodstuffs, etc – maybe even under OH&S! We have a gorgeous kid at our school whom I am sure is borderline. He doesn’t struggle with the lights but I notice his lunches are the same as most kids. I have no idea how to broach the subject to his folks that the choice of foods can make a difference too.
I have also noticed how often the Autism pages on the Internet are unfinished, incomplete, outdated and badly written, some societies have no contacts nor do they even appear to exist, and letters regarding same tol periodicals are not informative but more condoning of the government than offering ways to get THROUGH to them, so to know you are out there making an effort in a positive sense, to gain groundcover for this situation, is a merit to you. I congratulate you again. I hope there will be many many more responses to your pages, it is a shame that only few have so far commented re your topic so far. Start spreading the news. Good for you.
The info on lighting is fascinating. I am looking for solutions for our school. We’ve been turning off the flourescent lighting but were thinking of purchasing those fabric panels to cover them. I’ve also seen flourescent light covers and difusers such as those sold by USA skypanels. Would appreciate your view of them before going ahead. Thanks, Linda
minimum would be the use of ‘warm white’ bulbs instead of the harsher ‘natural’ ones.
yes, the diffusers seem to help somewhat, especially the yellow ones which put the yellow back into the spectrum which fluoros are missing.
be careful re fabric. heat could cause a fire.
good luck
Donna Williams
http://www.donnawilliams.net