What is autism? Beyond autistic stims, symptoms and stereotypes.
My definition of autism has evolved through my experience as an autism consultant with hundreds of children since 1997 together with my own experience as a person assessed as a psychotic infant in 1965 at age 2 and later diagnosed with autism.
My definition has been captured in various ways in my 9 published books, perhaps most particularly in Autism; An Inside Out Approach and in The Jumbled Jigsaw.
In my view, autism is NOT ONE CONDITION and hence there is no one-size-fits-all approach which will best fit ALL people diagnosed with autism or Autism Spectrum Disorder (ASD).
In my view, autism an UMBRELLA TERM for an ONGOING COLLECTION OF AUTISTIC RESPONSES which can be:
- Compulsive or involuntary
- Self stimulatory
- Self protective and distancing
- Distress reactions
- Result of addiction to one’s own chemistry highs
- Attempts to connect and make sense of one’s experiences when usual channels are emotionally, physically or otherwise developmentally blocked
Whilst we can talk of ASDs, THERE IS NO ONE TYPE OF AUTISM because autism is like a fruit salad.
For each person diagnosed with autism the pieces in that fruit salad can be many or few, big or small, exotic or common.
When the ‘fruit salad’ is chronically too big for the infant to handle their development and responses take an ‘AUTISTIC PATTERN’.
Among what can be underneath a label of autism or ASD can include GREATLY VARYING COMBINATIONS of any or all of the following:
* Visual, verbal and proprioperceptive Agnosias – meaning blindness, meaning deafness, body disconnectedness which can alter the learning styles available to the person with autism. So, for example someone with visual-verbal agnosia may struggle to think or learn visually or verbally but may cope well learning physically, musically or through experiencing systems of things. Agnosias can sometimes be reduced in their severity and can always be adapted to once understood.
* Often treatable or manageable, inherited or acquired, gut, immune and/or metabolic disorders leading to changes in mood, anxiety, impulse control, awareness, comprehension, attention, energy levels and general information processing.
* Altered neurological integration (the links in the different functioning departments in the brain) resulting in the movement and articulation (pronunciation) disorders of Dyspraxia (clumsy child syndrome), muscle tone disorders like Hypotonia (floppy child syndrome), sensory integration problems, sensory hypersensitivities and Synesthesias (sensory cross overs) and subsequent altered and often delayed information processing, all of which can be worked with constructively.
* Inherited or acquired onset of often manageable co-morbid mood, anxiety, rage, or compulsive disorders (may include tics ) and/or attention deficits.
* Inherited or acquired often manageable tendencies to addiction which can manifest in addiction to emotional extremes and fixation on what which trigger them.
Autism and ASD may manifest in more stereotypical patterns in those with particular personality traits such as the Solitary, Idiosyncratic, Vigilant, Artistic, Conscientious, Leisurely, Devoted, Sensitive, Serious and Inventive and may be present but appear less stereotypical in other personality traits. Because of this, programs often seek to inhibit natural personality traits, confusing these with ‘the autism’ and further complicating the stress and confusion experienced by people with ASD.
Home, learning, employment and social environments become part of that autism fruit salad as they can be MORE or LESS:
- sensorily overwhelming
- accommodating of learning, personality, sensory-perceptual and physical (ie motor planning) differences
- empowering and patient
- emotionally overwhelming
- nutritionally or physically healthy
- informed, open minded or capable of embracing, advocating for and working constructively with diversity
- degrees of social and professional support appropriate to their needs as a family and the nature of a particular person’s ‘fruit salad’
What determines the abilities and progress of any person with autism, is how the fruit salad is respectfully managed based on solid understanding of those components. Some aspects of an ‘autism fruit salad’, in some people (and may not be present in all for them to be equally ‘autistic’), will require treatment, others management, others adaptation and some only understanding, respect and acceptance.
All things grow differently depending on the interplay between their inherent nature and their environment conditions.
copyright 2007, Donna Williams.
Donna Williams
autistic author, public speaker and autism consultant.
Human Differences and Similarities
For last past several years, I realized that among any human category there are about as many differences between individuals as in the general population. People with autism spectrum difference is one of many good examples. With my involvement in the autism community, I saw this clearly in autism. Eventhough we may get a similar diagnosis plus sharing many interests, we have as much differences between us as either of us with anyone of the general population. Categorizing people creates illusion of those in a given grouping of having greater similarities with each other than with others outside of their group. The groups do not matter. In all of humanity, we each share similar amounts of both differences and similarities with one another. Each one of us is made of bits and pieces of everyone else, but in various combinations. Even though a lot of our differences are obvious, we are much more similar than different. I see and believe strongly in oneness of humanity. I see people less in clumps categories) and more spread out evenly (oneness) as in frozen berries. The older I get the more I see that we are one and that it would be best if we would strive for unity.
Debbie
myspace.com/dithorsos
Hi Donna,
I am with you regarding the comments on what defines an autism spectrum disorder. In the fifteen years since ‘Nobody Nowhere’ was published, I too have noticed in textbooks and your works the differences we have found; on how it is ‘the fruit salad’ defined in your lectures rather than one homogenous condition.
I am able to relate to your points more. For instance, the buzz like highs from the MSG in prawn cocktail crisps or pasta sauces, distress reactions (sometimes misfiring and not meaning to overreact), and sometimes, processing issues (hence the final point regarding experiences).
Stuart.
[…] Donna Williams’ Blog Ever the arty Autie « Donna’s Williams’ Definition of Autism […]
i came across one of yr books many years ago and it changed my life. being extremely high-functioning, my family (even tho dad was a medical practitioner) attributed my quirks to eccentricity brought on by an extremely painful autoimmune problem. i learnt to cope but life to me was always “on the outside looking in”, or “living in a goldfish bowl”. i have no difficulty with language, i could read and write by age 4 & was a prolific writer, artist and musician in this order, but age 7. i have lived with many labels thru my life, especially when love relationships failed. eccentric is a favorite one. now, i m middle aged and fairly given up on ever finding anyone who will understand and give space for my behaviors & quirks, one of which is “verbal diarrhea” as exhibited in this overly long note! all i really want to say is donna thank you for making so many things clear to me. i love myself all the more knowing why i am who i am!
bunnyblu
It’s really interesting your Dad felt your issues resulted from an autoimmune problem. There’s a whole group of people with autism who have gut, immune, metabolic disorders and I’m sure they’ll find they belong to a particular genetic group. Wild you are so arty, another arty autie, huh 😉 if you haven’t seen it go to you tube and look for my clip ‘from autism to artism’… my view is many people with the artistic personality trait, seem pretty autistic before they can dare to show or organise themselves artistically. This is because the artistic trait naturally is drawn to nature, objects, sensory experience before people and tends toward mood swings and is solitary by nature and learns through doing and in hands on environments… which schools often don’t offer. So with a little more autism fruit salad a lot of that personality trait can get confused with ‘the autism’.
Glad you’ve befriended yourself… there is no better gift.
🙂 Donna *)