Is Asperger’s real? The case for subclinical Aspergers.
What’s sub-clinical? It means non-medical, or underneath the medical radar, not medical enough to justify a medical diagnosis. But their distress, alienation, their desire to understand themselves and their place in the human race may be very real indeed. They may have more need for validation of their identification than for services but where are the services for validating identity, or for helping people explore it, sift through it and healthily come out intact out the other side?
In an online world, diagnostic labels have become cultural currency. Where once you might identify with your homies by wearing Adidas or Nike, now you can say whether you are exploring, self diagnosed, peer diagnosed, formally diagnosed and with which labels. If you don’t like the labels you had or feel they did you harm or were the wrong ones you can shop for those you identify more with and if you don’t get the label you want you can keep seeing therapists until you find one who agrees with your own self assessment. In the meantime people can be on waiting lists for those therapists, therapists who hand out labels for things like access to services. So what type of therapists might help validate those in need of identity validation? A life coach helps people explore identity. A mental health social worker helps people with identity related dilemmas, the confusion, anxiety, alienation these cause them and helps people adjust their lives to better fit with how they see themselves. A psychologist may help explore identity but generally focuses on pathology and how to solve it so if you’re really wanting to explore identity and celebrate it not treat anything, a psychologist is probably not your person. A psychiatrist can give you a label for an illness according to a DSM and offer to medicate it. So not sure that’s going to help those suffering from an identity they feel doesn’t fit or a new one they want validation for.
Is the world unfair, unequal, has no place for oddities? Guess what… life’s tough, people won’t understand you… nobody will care about your ‘shit’… and that’s a symptom of a serious social disability called OVER POPULATION… it can be cured by condoms… if we cure it enough we’ll all stop taking each other for granted – guaranteed. Fact is Dr Phil and Oprah have lied… the world was never meant to be kind and equal to all… its overpopulated, has bred greed and competition and heirachy and hypocrisy.. its time we faced up to the fact we are too selfish to care about the planet and too selfish to care about any children but our own ones, and too selfish to care about any groups but our own homies and essentially if we had to walk 5 miles to the next human we’d really appreciate them whoever they were
A diagnosis of subclinical AS may help those who are looking for identity validation but don’t see themselves as having any significant level of disability. And disability is also relative. Any human being with a strength will have a related weakness. It’s how we all work, all we human beings, no exceptions.
Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.myspace.com/nobodynowherethefilm
http://www.donnawilliams.net
http://www.aspinauts.com
Ha.. my 11 year old “aspie” daughter to day return from “holiday school” I asked her if you had met any one interesting or made any friends, she said yes… Calen she is nice, she has aspergers and Flelicity she talk alot and really well she has autism but I think they diagnosised her wrong really I do… not really a discusion we have in our house just her own take on the world.. her take on the world or has she overheard conversations of her adult carer givers the latter I believe she is really not that concerned about that sort of thing.
I have Asperger’s syndrome and one its manifestations in me is hyperlexia. I am obsessed with words, spelling mistakes, grammar and print fonts. You might find this difficult to believe but in your post I see all the ‘ll’ ligatures as being highlighted in yellow.
Welcome to my world; until my diagnosis a couple of years ago I thought I was either mad…or another species.
I see it a lot different than you Donna, but this has a lot to do with my own experience.
After having a very classical autistic nonverbal childhood, I continued having problems throughout my childhood, youth and young adulthood. I finally got diagnosed several years ago with HFA and got trained even more (also already in my childhood). I beginn to integrate myself more and more and got tested again and my social understanding was in the normal range. So the psychiatrists decided that I’m in the subclinical range by now. I’m not quite sure if I’m supposed to be happy about it or not. Especially because my best time in my life was my childhood and also because of articles like this who think that people who have been called “subclinical” were “shopping” for a lable or something. :/
great comment Jasper… I very much feel identification needs to be acknowledged, just not necessarily diagnosed and desperation to have an identification diagnosed seems questionable to me as diagnosis is actually for treatment and services, but acknowledgement can be made, by a professional or by peers without it being a formal diagnosis and if what one is needing is acknowledgement and discussion that should be possible. As for your own situation, I understand that a lot, before age 5 I was significantly more autistic, then once I gained functional speech age 9-11 significantly less so, then even less so after I got an education around age 18-24 and then even less so once I began to write all my experiences out instead of carrying them all inside of my own world and eventually then I could walk comfortably along with my reality, advocate for it, openly adapt in the healthilest ways possible to it, and of course that means being less obviously ‘autistic’ without trying to be non autistic if that makes sense… but yes, I very much valued much of my more autistic reality… a world where words were just patterns, everything was about being, objects and nature and elements were all equal to experiences in the human world, where a world of visuals without meaning was a place of living ARTism, where I felt like a god, autonomous and self owning, self contained but contentedly so, yet still open to the world in the sleep walker sense of the phrase. So I do celebrate your development, and its arrival at ‘subclinical’ and your history as significantly more autistic and the mourning of that yet simultaneously the celebration of where you are now… all people grow and grow up, just for folks like you and I that is like having spent one’s childhood on Mars and now living on Earth. very different worlds… but great we got to know both!
and I don’t feel I lost who I was or my own world… I feel I healthily expanded on it and I retain most of what was because I was so late to move out of it, so its still very natural and memorable to me… if I’d ‘outgrown’ so much by age 3 or 5 instead of by late childhood to teens, I’d maybe have lost touch with my earlier world more.
Hello Donna,
Thank you for your long respons. 🙂
I’m still not quite sure what “subclinical autism” means anyway. Does it mean someone has symptoms, but not in the diagnostical range?
Well for autism in my case this might be true, at least for my social understanding.
I found it very interesting what you answered me, eventhough I’ve trouble concentrating at the moment (I don’t have ADHD, I’m depressed at the moment and english is a foreign language for me). Sadly being in the subclinical range of autism doesn’t mean that I don’t have any other problems. I always identified much with your fiew that autism is a fruit salat or a mixture. I watched my AQ change over the year. 2007 it was 32 and nowadays it’s around 26 to 24. Interestingly as a teenager I had an episode were I improved very much within half a year to a year in my autistic symptoms, but I developed at the same time mood problems. My psychiatrist has a Bipolar II suspicion, but not confirmed by now, so I’m just diagnosed with depression. But never the less I found it interesting that one “disorder” seemed to replace the other.
if you’re not on omega 3s, 2000mg-4000mg is used as ‘natures lithium’… as a mood leveller
Is Residual Aspergers another name for Sub-clinical Aspergers? For me, this term fits better somehow!