Autism and Sensing
As a parent of a boy with autism, Nancy Bekhor discovered a way of being that assisted her to be more open and available to the non-verbal-realm of her child for their mutual benefit. I invited her to ask me some questions about Nancy Bekhor sensing in the context of autism. Here’s our interview.
NANCY BEKHOR:
The term, NONVERBAL seems to have a different meaning in the following two contexts of autism
1) Highly logical individuals, with so called ‘Asperger Syndrome’, who have difficulty with understanding the ‘non verbal’ aspect of conventional speech. This shows up, for example, as missing the ‘joke’ or sarcasm… basically where words themselves do not convey %100 of meaning intended.
2) On the other hand, the ‘non verbal’ realm, which you speak of in your book, Autism and Sensing, is a mode of information communicated by feeling, intuition, sensation… a place of art, ‘knowing without asking or learning’ (as with savants). Here the more typical individual has difficulty understanding.
Are these 2 different meanings or different degrees of non-verbal?
DONNA WILLIAMS:
They are definitely two different experiences entirely.
There is NONVERBAL LANGUAGE DISORDER (disorder in NONVERBAL language systems such as body language, intonation, facial expression) and being FUNCTIONALLY NON VERBAL. Totally different conditions. Though those who have one can also have the other or have only one of these… same as one can have blond hair and be short or one or the other.
Now Social Emotional Agnosia seen in Aspergers is a NONVERBAL LANGUAGE DISORDER and means people can’t naturally perceive any meaning to facial expression, body language, intonation unless overtly taught it. This leads them to compensate through logic, intellect and because they generally don’t easily sense this missing realm they develop high intellect rather than high ability to sense pattern, theme, feel.
By contrast those with significant sensory or sensory perceptual deficits are not necessarily impaired in the social-emotional realm so it is more natural for them to expand into that realm as a compensation for sensory or sensory perceptual deficits. This is whether because they are blind, deaf, deaf-blind or the perceptual equivalents of meaning deaf (verbal agnosia), meaning blind (visual agnosia) or both.
In other words human beings can be more or less sensing, but if they ALSO have significant sensory or sensory perceptual deficits AND they have no neurological obstacles to sensing (such as Social Emotional Agnosia) then they will be reasonably more likely to become more highly reliant on sensing pattern, theme, feel through whichever sensory perceptual systems are still intact.
So it HAPPENS that there is no sensory perceptual reason for Aspies to be FUNCTIONALLY NONVERBAL in the sense of being speechless. But those who have significant meaning deafness and meaning blindness may have significant struggles to acquire SEMANTICS to speech and will then lack the PRAGMATICS too. Depending on personality and whether they do or don’t additionally have Oral Dyspraxia, Speech Aphasia or Selective Mutism, those with significant meaning deafness/meaning blindness will often be echolalic. Many who have speech and communication disorders (including echolalia) will then be more subject to secondary Selective Mutism. So it HAPPENS that those most likely to become highly sensing as a COMPENSATORY ADAPTATION for significant sensory perceptual disorders will also be those most likely to be functionally non-verbal.
Saying that, SOME will develop fluent type-speaking and some have progressed to functional speech and still remain highly sensing.
NANCY BEKHOR:
Do the highly logical individuals described in the first paragraph also have no access to that non-verbal-realm of the second?
DONNA WILLIAMS:
What you’re actually asking is whether
a) having Social Emotional Agnosia would reduce one’s ability to be aware of the System of Sensing – yes, I think so, in the same way that if one is born blind one may be unaware of the experience of color except by translating through a system that’s still intact.
and
b) developing highly level compensatory reliance on intellect over intuition/sensing would leave the ability to sense underdeveloped – yes, I think that will generally be so.
NANCY BEKHOR:
Is the Aspie’s path toward sensing therefore as barred as those with typically developed neurology?
It has been said by various philosophers that anyone is barred access (to sensing) due to over reliance on linear thought, verbal communication and mental focus. Further that there is something of great value to humanity in this realm of sensing but unfortunately people ‘do not know what they do not know’.
DONNA WILLIAMS
Yes, I have tended to find many Aspies are not strong at sensing. BUT I have found that some who were diagnosed with autism and then developed speech by mid-late childhood could appear to have Aspie features but were still highly sensing. By contrast, I have met a far higher percentage of those with autism who are functionally non-verbal, even great type-speakers, who were highly sensing. In other words I don’t think its set in stone but there’s some general observations that those limited to linear thought, mental focus and verbalising tend to be more ‘interpretive’ and less sensing. Saying that, if I need my computer fixed I’d need an Aspie 😉 If I need a navigator for my soul, I need someone who is good at sensing.
I also think that non-linear thought is common in certain personality traits… like the idiosyncratic-schizotypal pattern, the exhuberant-cyclothymic pattern, where the conscientious-obsessive/compulsive personality trait pattern is a more linear thinker as is the somewhat ‘paint by numbers’ Sensitive-Avoidance and those two are more commonly diagnosed with Aspergers.
So the degree to which one is sensing versus interpretive would be influenced by personality, neurological integration, the presence of sensory-perceptual deficits etc.
NANCY BEKHOR:
Could the different autism focus that is referred to above be simply a parallel to the common human traits of being mathematical or artistic. Some type of right or left brain dominance to which these differences are ascribed?ÂÂ
DONNA WILLIAMS:
Not sure about the right/left brain side as people can develop traditionally ‘right brain’ functions in areas of the left hemisphere etc. Equally, there are linear and non-linear thinkers who are logical/mathematical and I’m a systematician but I can sense systems, so I can combine the two wonderfully. I’m also have a strong idiosyncratic trait which is very non-linear in its thinking which is probably why. But there will be those who are more OCPD in their style, and more linear, who will also be logical/mathematical and will be analytical but not sensing.
Similarly there are those who do quite constrained, quite ‘linear’ art and really struggle to let go, explore, feel the art. So it really depends where the art or logical-mathematical styles come from… what personality and neurology package they’re in.
NANCY BEKHOR:
Are we really talking about a problem with the word ‘autism’ having 2 different meanings? and this is not helpfully described by the word ‘spectrum’. Or are the 2 types interwoven?
DONNA WILLIAMS:
Hmm. Well I think we can talk about one form of autism as relating to over reliance on intellect, linear thinking, verbal communication skills at the expense of sensing and another form of autism involving significant obstacles to traditional intellect, yet with often intact emotional intelligence and intuition, and tendency toward non-linear thinking but all at the expense of smoother executive functioning and verbal communication skills.
As for the use of the word ‘spectrum’ there, that gets confusing because from this angle is is not really a spectrum at all, no more than a pear and a cabbage both being carbs, they are not as similar as a pear and apple.
And then, saying that, there are those from the autistic end who acquired enough language skills and executive functioning to be presumed ‘Aspie’… which is really more about our stereotypes (that all verbal autistic people must be Aspie and all non-verbal one’s Autie).
So, all clear as mud 🙂
Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.myspace.com/nobodynowherethefilm
http://www.donnawilliams.net
http://www.aspinauts.com
Great questions! Great answers! I have often thought that there are two types of autism and the treatment plan for each should be different. The nonverbal kids I have worked with for the most part did not have the dependent on a set routine as the left brained more linear thinkers. They accepted change readily as long as you developed a trusting and loving relationship with them. Also this sensing type with extreme perceptual differences does not benefit as much from the rigidity of ABA type training. Yet, the programs out there seem to be geared to the highly logical type. I remember listening to temple Grandin in New York in the early 90’s when Nobody Nowhere came out. She had said that she felt that she had a different type of autism than you or something to that effect.
I have often wondered if severe autism was more prevalent amongst boys because woman have an easier time using both sides of their brain. Damage to the language center and motor planning areas might be more easily taken over by the right brain.
Thank you again for your great insights!
really interesting.
I was Dx with AS 4 years ago, and sinse then I go through
these times when I think…….HAVE I REALLY GOT IT…..
because I can do this or that etc etc.
One of the big things for me is that I am equally left
and right brained. However, they have always been
in conflict with each other………post dx I am starting
to learn how to dance with these two sides of me.
Recently I have been thinking of how for an aspie
i have incredable ability to read the inner-world of
others……..like a soul savant.
My work is doing just that……..i listen to peoples pain.
I feel their pain. I see their pain written on their faces
as clear as the light of day. Then I often feel…..hey, “I’m
not supposed to be able to do that”
I always thought this was because of my right brained
ability, or because of the fact that I have suffered
so much in life, or both.
This is really interesting topic. I don´t have enough informations, but I see always something missing in this dividing. First, if you are autistic and you speak, you get an AS diagnosis. Is it really right? Then: I don´t know personally as many Aspies as you know, for sure. But to see Aspies as logical persons without other autistic sensory perceptions in reality doesn´t work at all, to me. I see always the gap there. I am still learning something new about it, day by day, so I can change my opinion tomorrow – but to todays´me I find the only one difference between AS and other autistics: excessively fast thinking (you can call it logical and left-brain, but I think it doesn´t fit the reality). What if this is the only reason why AS develop language in childhood?
without you ever having been 90% meaning deaf I can’t possibly help you understand the equality of non-verbal thinking (ie sensing).
most people with autism in fact have some speech. Around 2/3rd are echolalic, others attempt to use speech but due to Oral Dyspraxia can’t make themselves understood, others have speech aphasia and again may have anything from incomprehensible speech sounds to squealing, humming, others are selectively mute or develop this in addition, and those without FUNCTIONAL verbal speech often still develop a range of non-verbal communication at some level from signing to typing and some then speak their typing. There’s also many dx’d as autistic who have no functional speech until age 3-5 then acquire functional speech where a lot won’t. I developed functional speech age 9-11 and before that was echolalic due to severe meaning deafness. Few with autism who haven’t gained speech by late childhood gain functional speech but some do. Jim Sinclair was one, I’m another, there are others, but not common. Though several adults who began typing in their teens have progressively come to speak their typing and speak then type. So without understanding the WIDE spectrum of communication disorders in those with autism it is silly to draw a line in the sand and say all who acquire functional speech much therefore have has Aspergers. There are likely those with speech aphasia who may think like any non-spectrum person yet still don’t acquire language naturally.
all the best.