Ever been a stranger in your own life?
I HAVE DID and I HAVE autism, and I HAVE tourette’s and I HAVE OCD and I HAVE immune deficiencies and I HAVE agnosias, but I AM Donna.
I am diagnosed with Dissociative Identity Disorder but also with autism, just like one can be blond AND short. The two are related in my case but of course one can have one or the other. But the autism side of it is where I couldn’t get the voice/body to be volitional, they kept directing inwards, not outwards, so parts of me could make it, but not integrated as a whole. I’m at that point now. I think I might ultimately make it. Otherwise it’ll be a dissociative life, one where different parts of me go offline, the body, the mind, the emotions, the voice whilst the rest continues to function and switch to maintain some sense of ‘life’.
It is as though parts of me broke out already; the mind, the voice, the body but none of them together. Together they remained on the ‘other side’. I existed in typing, the fingers talking. I existed in my feet and hands but when people tried to connect I disappeared, but the others were fragmented parts of me and continued, each trying to become a whole person, but unfortunately different whole people, and none of them able to be because the ‘glue’ was me, stuck back there, in the external world.
All my selves are ‘me’, they’re just parts of me – body without much mind, mind without much emotions, emotions without much mind, voice much without emotions, self protection without much attachment, attachment without much self protection etc and obviously there’s also the whole me but struggling with speech.
So integration for me is about getting all of my functions into one place, one direction, one broad identity instead of all these maverick parts of me heading out to make their own lives.
Oy. Do you ever feel overwhelmed by your diagnoses and the futile attempt to label? I have been diagnosed with Bipolar I, Sensory Integration Disorder (I think now called “Dysfunction” instead?), Insomnia, GAD, Depression, Anorexia/Bulemia, I’ve been told I may have some sort of Compulsive disorder and I’ve been told I may be on the Autistic spectrum, may as well mention I’m a recovering drug addict and alcoholic, but now finally I am done with being labeled! All of those things describe parts of me (the eating disorders mainly in the past) but then I often become more focused on figuring out “which symptom of which diagnosis am I experiencing?” And I get completely distracted from any actual solution. Daily. And I feel more separated as a person, less integrated. Scattered. Oh, that’s compulsive Coco. Oh that’s paranoid Coco now. And don’t blame me that was Bipolar Coco, she’s real fucked up. And oh no don’t touch me now I have Sensory Integration Disorder. Having been labeled so much just makes me feel that I focus too much on these disorders and on labeling my own symptoms rather than simply living life. My partner I see living life. It looks normal. It looks peaceful. I want that. I don’t want these labels anymore. I don’t want to use them as excuses. But I do want to be understood. Where is the balance?
your “being”, described above, i understand perfecly. thanks Donna for sharing, i’m receiving your words as words of wisdom !love
Thank you for giving me a glimpse into my son’s feelings that he’s often not able to verbally express or share with me 🙂
Hi Donna,
It looks from the outside like you’re ultimately going to make it.
Paula