Can one inherit Dissociative Disorders ?
The session was harrowing, challenging. Some of my alters love or were loyal to or identified with one of these Jacks. Other alters in my team, are more than aversive to the other Jacks who shared his body. By the end of the session my team had laughed and cried and raged and we were dizzy, overwhelmed, tired.
My father had many names he referred to himself by… Jackie Paper, Johnny Bedrock, Jackie Williams, Sparkling Arkie, Wild Dog Dingo, The King, Poor Boy. Some of these Jacks seemed to barely recognise ‘me’ as his child or that he was anyone’s father, to other Jacks ‘I’ was a symbol, HIS daughter, to one of the Jacks ‘I’ was confidante and comrade, with one of them ‘I’ felt valued and treated like someone’s real child. As someone who themselves is diagnosed with DID, I understand now my conflicted feelings about that fragmented man.
My father fitted dyslexia, ADHD, bipolar, language processing disorder and obviously also DID. DID commonly overlaps with Schizotypal Personality Disorder, maybe that’s part of his picture, it is part of mine.
Then there was the question of what tipped him from merely a dissociated, perhaps derealised somewhat Schizotypal child into an adult with DID? His mother was a joy and a delight, his father moral, responsible, serious and loyal. These grandparents became my custodians until I was 4 and a half when my grandfather died and my grandmother was sent up the bush. I loved these people, they were warm, safe, and they loved me. But families are not always what they seem and who people are as grandparents can be very different to who they were decades before.
Jack was the 6th child of an inbred mother whose parents were first cousins, whose grandmothers were mother and daughter and whose grandfathers were brothers. They lived in the bush, apparently so poor they once lived in the hollow of a tree truck when he was 3. He moved to the inner city slums of then Fitzroy around age 6, probably around 1940 in the midst of the Great Depression.
My grandmother was, by then, a dipso, drinking her way onto the pavement with red wine where the ridicule of slum locals and their children left scars on my father. He spoke of being a typical ADHD type of kid, distracted, class clown, struggling to attend, to comprehend, to learn, that he’d climb down the drain pipe out of the window when the teacher wasn’t looking, that kids at school had pursued him up a tree then thrown rocks until they hit him out of the tree where he fell on his face, smashing his nose. He spoke of local kids mocking his drunken mother and kicking her as she lay on the pavement. He spoke of the shame of joining in with them. He spoke of having to remind her who he was. He was conflicted between being deeply ashamed of her, needing a mother who functioned more fully than she did or could, angry she wasn’t more than she was, but also deeply cared about and loved her, always trying to get her things to show he cared, things he would steal because the family had nothing, then he’d be admonished for doing so.
He spoke of his father, a moral, self righteous returned WW1 vet who had buried much of his regiment in Villiers De Brettenaux but returned to find his wife with another baby and another life. After 14 years as a swaggie, he had met my grandmother, a woman with 5 children to almost all different fathers.
According to Jack, his father could fight, took no crap, and would quote the bible. Jack told of being scrubbed with a wire brush, having his mouth washed out with builders soap for swearing, that his father took an axe and cut down the stairs once when he thought Jack was up there, that his father had thrown the wardrobe from the terrace house balcony in rage. Jack told how his father never believed he was his own child and made Jack and his mother walk a distance behind him in the street, that at home his mother had once been banished out to the back yard to sleep for 10 months and slept there under a tarpaulin until she was again allowed in the house.
From my perspective, my mother was everything that would have cemented and exacerbated whatever DID Jack already had, just as I think his issues exacerbated her alcoholism, personality disorders, and psychopathy. Though I feel amidst her personality issues that she would have fitted Borderline (BPD), which can involve derealisation and dissociation, I never felt she showed any signs of having DID. I did experience her as shifting between roles, but they were thin veneers and she didn’t switch, she merely revealed what you could always feel just underneath there anyway. Jack was different. His alters weren’t roles, meeting them each felt like a whole person, larger than life, sure, but integral, not veneers. It wasn’t like you could feel the other Jacks still there. It was as if each had left the building.
The Jackie Paper part of my father would have made a great kindergarten teacher. The Sparkling Arkie part was friends with high rollers, crooked cops, fraudsters and dealers, robbers and pedophiles and bragged he could get himself a 12 year old. The one he referred to as Wild Dog Dingo part took guns off the wall and shot at people, smashed the house up, rampaged with the axe and was terrifying. The Johnny Bedrock part was a warm but workaholic wheeler-dealer, everyone’s buddy, a people person, kind and generous. Jackie Williams was the ‘self made man’, Mr Respectable, a family man with the house, car, swimming pool and boat to prove it. Poor Boy Jack behaved like a broken self pitying child, allowing my alcoholic mother to verbally degrade and abuse him, physically threaten him and never fight back with anything more than a muttered whisper and a face pulled behind her back.
There are those who glorify DID as a beautiful adaptation to extreme circumstances, encouraging those with it to feel proud they were ‘survivors’. I struggle with that. I don’t think DID is ugly, but that it can be both ugly and beautiful. I don’t invest in an identity as a ‘survivor’ because I wish to be broader than the contexts of the neglect, trauma, loss, abuse I have experienced. And if I look at my father’s splitting, the idea of ‘survivor’ and ‘a beautiful adaptation’ becomes even harder. We were surviving HIM. And his alters could be endearing, wonderful, captivating, or tedious, self indulgent, endangering or down right dangerous. What was so hard in facing my fathers lot, because my team have such intense, conflicting feelings there, and because his DID contributed to mine. But I can say I love, fear, am enraged by, care for, am endeared to my different fathers within that one body they lived through.
I also struggle to see DID as a beautiful adaptation when it has the highest suicide rate of any mental health disorder. Therapists attempt to salvage this ‘beautiful’, ‘gifted’ idea from the rubble of a DID journey and some DIDers are happy to build identity on that, identifying as ‘survivors’, ‘gifted’ etc…. I have no interest in defining myself by my mental health stuff, especially as integration began organically, naturally for me, something longed for but not possible until the Core Self came out of a Schizoid, depersonalised dormancy and created a fruit bowl effect for the scattered fruits to find home in… so if I over identify with the ‘beauty’ of DID, it wouldn’t have allowed me to embrace the beauty of integration as my own natural evolution with my DID.
I do agree that those with DID are lucky they had the capacity to survive through splitting but after the horrors are over, DID can be really disabling, harrowing, and the journey to co-operation/integration can be as challenging as what gave rise to the DID. I also feel that those with DID and the alters in their team can be beautiful and gifted, and especially some of the most angry, raging or crushed parts who need to be recognised as more than that so they can rise above it.
The rest of the week those in my DID team made peace with our father’s DID. There is no easy way to bury the dead, let alone a dead multiple whose issues went with him, unresolved. But perhaps I inherited not only the genetic predisposition to dissociative disorders from him, but the environmental inheritance of the abusers he chose to surround himself with (particularly my mother), his modeling of DID responses to neglect, trauma, loss and abuse, the impact of his endangerment, inconsistency, neglect, insanity. Most of all, I inherited his legacy and my therapy is, in part, his therapy by proxy. Perhaps that’s resolution.
You can find more info at my website http://www.donnawilliams.netincluding my consultation page for DID where I offer online Peer Support.
Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.donnawilliams.net
I acknowledge Aboriginal and Torres Strait Islander people as the Traditional Owners of this country throughout Australia, and their connection to land and community.
Wow! Now you have the theory, what about the little girl inside? Do you know that the Samaritans can sometimes tell those adults ringing in who were abused as children as they can ring with a small girl’s voice (or boy’s). Does the hurt child inside stay forever, fighting its way to the surface sometimes? There must be so many children coping with two difficult parents as, like you say, a parent with troubles can pick up an abuser partner. As if it isn’t bad enough just having the autism etc to cope with without 2 non-coping parents. But you can make your fortune from this Donna as ‘misfortune’ stories are hot at the moment (goodness knows why) – but, and this is the biggie, you can reach out and hold the hands of so many others – the ones you are already helping every day with your wisdom. Insight, wisdom and a way of explaining are your definite gifts and as you beat your way through the forest, we follow you and the route is a little easier for us. You bring out the sunshine where there was darkness and understanding where there was fear. The world is a much better place for having you in it.
It was always very hard for me to talk about the ‘fruit salad’ of my parents. In the autism world there was MASSIVE taboo to speak of having anything other than wonderful, loving, well adjusted parents… otherwise one was ‘an abuse case’, everything about one’s developmental disabilities was then cast into some ‘pity box’, one couldn’t possibly have bee a REAL ‘autistic’ because one was only and ever then born to healthy parents. Of course as Aspergers came to light in society in the 1990 people realised there were parents on the spectrum, then ADHD joined the autism spectrum and it was accepted some parents of those with autism could have AS, ADHD. Then co-morbid mood, anxiety, compulsive disorders were recognised in those on the spectrum – another taboo was that those with autism could only have this SINGULAR, PURE mysteries condition called ‘autism’, that it could never be blurred by co-morbids added and well mixed into the info processing or sensory perceptual issues. So then we had to face that some parents could be have AS, ADHD, co-morbids. Then we came to face that some kids and adults on the spectrum had personality disorders, such as OCPD, Schizoid Personality Disorder, Schizotypal Personality Disorder, and reluctantly society faced that some also had Dependent Personality Disorder, Narcissistic Personality Disorder and, god forbid, Borderline complicating their autism or AS. So now we had to face that parents on the spectrum could have an information processing difference/disorder, an attention deficit, mood, anxiety, compulsive, and personality disorders in any combination. Finally, we were able to explore psychopathy and whether killers those like Martin Bryant could have both AS and psychopathy. The public of course couldn’t bare the idea but with psychopathy being found to be a brain anomaly, why couldn’t someone be born with more than one co-occurring brain anomaly. Then we weren’t allowed to suggest that parents of those with autism could be substance abusers, but with some adults on the spectrum speaking out about their own alcoholism and substance abuse, and of course some were parents too, then we had to face that someone with a range of ‘fruit salad’ could also abuse substances. Finally, we talked about dissociation, how this occurred naturally in all children up to the age of five as part of development, how derealisation, depersonalisation and splitting off experiences is part of a spectrum and all humans can experience these things. From there we had to face that as human beings, those on the autism spectrum, and those with all combinations of ‘fruit salad’ could also experience dissociation and that under extreme enough circumstances this could develop into a range of dissociative disorders; the wanderings of fugues, dissociative amnesia, Post Traumatic Stress Disorder, DDNos and in the most extreme cases, DID. Finally, coming full circle, we have had to face that there are parents who have abused and murdered their children with autism, we have faced the cases in the papers, on the net. And so we know there are children with autism subjected to horror, in the home, sometimes in residential care. We have heard about the compulsive bullying they lived with in schools, the restraining and injuries they experienced from teachers and workers managing them. So we can no longer deny that autism is all angels born to saints, nor even that compulsive over protection has saved or helped them. We can not longer deny that some children with autism will need to be removed from parents unfit to care for them who refuse help to acquire parenting skills, boundaries, balance. We can no longer glorify the families or those with autism by excluding troubled families complicated by their own information processing disorders, mental illness, personality disorders, or substance abuse. We will have to become transparent, allowing welfare officers and social workers to become assistants assisting dysfunctional, disturbed, damaged, disabled families and primarily their children, not feared as the enemy, the judge and jury, the invader. We will have to stop self righteously dividing society into the ‘good people’ and the ‘bad people’ to turn ourselves into saints by silencing and invalidating others and their equally valid realities.
Some of that cocktail and expected normality could explain why, when talking to siblings and other relatives they have total ‘amnesia’ about events. I could never understand how they could not remember things when events were all so clear to me – indeed I was the invisible one making it all up anyway without many listeners. Try to talk about a situation and get verbally punched for it and thought ungrateful. It is all very isolating and lonely with others who were there having not shared the same life. An ‘only child’ amongst many siblings.
I have no idea what to say about the personal journey you do/have faced, most especially coming to terms with what sounds like completely inadequate parents with so many failings… and the effect such parents had on your own development.
In regards to autism, Donna you sum it all up nicely… yes indeed there is so much to face up to with autism. I feel there still a long way to go but hope that there will come a point where the various realities of autism such as the reality of comorbids interacting with autism come out from under the rug they’re been swept… because as long as there is so much stigma attached to the very real mental ill health issues which can exist with autism, then individuals may miss out on the professional treatment many need.
I’m sure you’ve seen the sick stuff purists in the autism world have vented at me… their pity of me as ‘an abuse case’, as a ‘mental illness case’, their complete disregard for my diagnosis at age 2 because they prefer to feel I’m ‘just an abuse case’, ‘actually just mentally ill’, or the latest one… ‘actually had DID not autism’ (as opposed to being someone with autism who developed DID). And there are people so passionately hatefully purist, they put in good amounts of their time producing hate clips to continue the separatism, the stimatisation, the demonisation whilst self righteously patting themselves on the back and calling themselves neurodiverse representatives of autistic diversity and pride… clearly a very SELECT diversity, one that doesn’t taint or dirty them by proxy for including those with any mental health issue stronger than anxiety/depression blameable on ‘society didn’t understand my autism’. How convenient, how tidy, how narrow, how bigotted.
Hi Donna, it’s amazing what genetics brings to bear isn’t it. Reading your blog got me thinking about my own father who both my psychiatrist and I believe was either an undiagnosed Schizophrenic or had Bi-polar 1 with psychotic episodes ( including hearing voices and extreme paranoia). I know both illnesses can present quite differently, but at various times my father exhibited different parts it appeared of each. Without a formal diagnosis I will never know, but what I do know for sure is that both his uncles were committed to state hospitals in their time with a diagnosis of Schizophrenia, and his father medicated his own mental health issues away since his early twenties with alcohol, dying in prison at 50yrs of age of liver failure. Â My father, like yours had the terrible burden of a horrid upbringing, full of neglect, abuse and extreme poverty. He was also definitely a %100, couldn’t be more textbook, reclusive Aspie. I wonder if either of them ever really had a chance to get things right in their lives given all of their pain and mental instability. What I do know is that my father continued the cycle of abuse with me. And whilst parts of me can understand intellectually why he did what he did, others parts are still enraged that he never sought help during his few periods of wellness. I have inherited my Aspergers, Â query my Bi-polar 2 ( rapid cycling ) from him, and definitely developed the DID as a result of his actions. Boy does our family tree dominate a lot of who we are or what.
I completely get where you’re coming from. I am sure many who lived through abuse had 1 or 2 mentally ill parents, and that complicates it for them because the child then carries the responsibility for these incompetent, self indulgent, treatment phobic walking breakdown.
From my point of view autism is a strong predisposition of DID. Just being abused doesn’t necessarily make you multiple but the autistic mind is more vulnerable to dissociating emotions. All people diagnosed with autism I know or have known (most of them have Kanner’s Syndrome, what the purists call “real autism” and I lived in several housing projects for autists, so I know a lot of them) dissociate to some degree. The more intelligent they are, the more they dissociate, regardless of how their parents treated them.
Of most multiples I know I recognize autism in the stories of their childhood years. It’s either what sets them apart from their siblings who got equally abused and didn’t develop DID or it’s how they ended up traumatized or abused in the first place.
For me, I split – or in the theory of others: failed to integrate – because my autistic mind decided it was necessary to be able to “work around” my autism and function in this world – ‘society didn’t understand my autism’ so I had to find a way to ‘not be me’ and became many. There was no abuse that made me split, no trauma, there was just autism.
I would never have been diagnosed DID if I hadn’t had a breakdown after being sucked into the whole crisis of the financial world – they were looking for a savant to dance with the numbers and I was naively eager to help.
DID is not something I’m proud of but it’s a price I paid.
Hi Jake, yes, dissociation is a normal childhood process and yes, like you I have seen extremely highly developed/overdeveloped tendencies to dissociate in people with autism, and, agreed, the more ‘severely autistic’ and intelligent, the more those in this situation tend to dissociate. I have known people with autism develop PTSD due to being non-verbal and constantly treated like imbeciles, I had known people with autism who developed other selves they chattered to in their own muttered banter which they have occasionally confirmed verbally or in typing, I have known people with autism whose stimming is how they close out the foreground and return to their own dissociative states. Exposure Anxiety is, essentially, a compulsive self protection mechanism and a foundation to dissociative disorders in that one of the only ways out of the chronic avoidance, diversion, retaliation responses is… dissociation. So dissociation is a healthy thing that, when chronically over developed becomes a dissociative disorder. Recently there are new studies confirming high dissociative tendencies in people with autism… its a no brainer really. All the best in your own journey.