Fall Apart Syndrome – a poem about EDS IV
Glue me together and glue me well
or at least make me youthful so no-one could tell
perhaps skin of velvet, the skin of Snow White
ears without earlobes, a pixie’s delight
the bruises must be that she’s delicate made
the infections and allergies, the sensitive’s lot,
the arthritis of childhood, we can medicate that
the fatigue and myalgia, lets get her a cat.
Immune system failing, supplements are at hand
Abdominal adhesions surgeons can’t understand
Muscles that spasm and contract or just tear
Joints that keep clunking like a rust everywhere
Spinal Stenosis, spinal cord getting squeezed
Can’t hold onto urine so don’t dare to sneeze
Dysautonomia, bladder, bowel, breathing, heart,
its all part and parcel of falling apart.
Machine to keep breathing now brain has forgot
a life of referals for goodness knows what.
A new label arrives for the jam jar once more
Ehlers-Danlos they call it, dreaded type number four.
Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.donnawilliams.net
http://www.donnawilliams.net/weirdoslikeme.0.html
I acknowledge Aboriginal and Torres Strait Islander people as the Traditional Owners of this country throughout Australia, and their connection to land and community.
I mentioned this poem in a post, found at “http://mutatedspawn.blogspot.com/2013/03/battle-of-bruises.html” It truly is excellent. Thank you for publishing this for others to read.