Autism Blog: Living with Visual Agnosias. Are You Trying To Blind Me?
 Having worked a lot with children with autism who display visual agnosias including object blindness and context blindness, non-standard sensory explorations are normal in those who process the part and lose the whole and for whom each part then conceptually becomes the whole. When I got a doll’s house at age 7 I thought the roof was a musical instrument… some kind of huge angled red plastic zither thing. I then thought the walls were blocks and disassembled them and re-categorised them by size. I tapped and pressed the doll’s furniture them put it into two piles according to the noises each made (hard and soft plastic) and whether the pieces could bend. This is normal in visual agnosia. My mother helped me grasp this collection of pieces as a conceptual whole by getting wallpaper books and carpet books and decorating the ‘rooms’ in the doll’s house. Then I could texturally grasp the relatedness of these small rooms and the larger rooms of the real house.
But it’s not easy to be context blind and have some object blindness and move from hotel room to hotel room. But I have a system. I always put my objects into their action-related categories (computer, cleaning, eating, dressing). I always keep them in one room lined up by the wall. I always keep them in their related bags. I put things straight back after use. I ensure good contrasts between my belongings and any furnishings, curtains, wallpaper or carpet they may perceptually ‘disappear into’. And most of all, I DON’T MUDDY MY CATEGORIES. In other words, placement lends meaning to things, system lends meaning to things. And it’s almost a blind person’s world. Except I’m not blind, I’m meaning blind, visually agnosic.
So I left one of my hotel rooms and returned to find my nightmare. Everything had been moved and ‘put away’.  Part of the bathroom had had 2 hotel dressing gowns and coat-hangers in it as well as a rail these hung on. I didn’t recognise this as a walk in wardrobe but the cleaning lady did. My clothing was put into this ‘bathroom’ and my coat hung up so I now couldn’t recognise it. To me it was now a brown hotel dressing gown.
In the main room nothing was lined up by the wall. A piece of raised dark wood on legs had been moved in (a new piece of furniture! ARGHHHHHHHHH!!!!!) and my laptop (yes, my other VOICE had been handled, transported, onto this foreign thing! Blasphemy).  And underneath the laptop on a shelf were bags ofwashing things and bags of eating things and I just stood there gaping. What was all this? A sculpture? Some kind of instalation art? A sick joke? I looked at the washing stuff… was this a wash stand and why did it have a laptop on it? I looked at the eating stuff… was this a kitchen bench… and if so why put a laptop on it, wouldn’t it get drink and food on it? I wanted to open the laptop and scream through my fingers via its keys but I couldn’t remember how to use it. Something about feeling bathroomed and kitchened whilst trying to be officed was boggling my brain. I had to boot out the washing and eating things to access the part of my brain which used PLACEMENT and category to access MEANING and MOVEMENTS… ie USE. It was like being shot in the semantic-pragmatic department of the brain.
So I disected the unrelated foreign bodies from the wooden thing I now proclaimed a ‘desk’ and began to breath. Then, next to the new ‘desk’ were things blending into the carpet patterns and blending with the side of the wardrobe beside me (well, the wardrobe thing had a TV in it so not sure what that is). Next I discovered some of my paintings ‘stacked’… STACKED? They had been comouflaged. And something else I picked up as if giving it a carpet-ectomy and I stared at it, shaking it a bit to work out what it once was that moved like that last in my hands.
Finally I sat chilled, afraid someone could have taken half my stuff this way and I’d take hours to work it out. I felt like a freak. How on earth could I complain that someone had CLEANED UP my room!!! I went around reclaiming everything and recategorizing it and lining it up against the wall in a place of good contrasts. Then I asked my hosts to have a word with the hotel staff and ask them to please not ever clean my room again until I left. The manager looked perplexed. I’m meaning blind, I explained. You don’t move things on a blind person and I’d be so grateful if you don’t move them around on me. She smiled and nodded, no problem. I went to dinner, rattled at how easily those with different visual perception can so easily create disabling chaos through their intentions to be helpful.
At dinner I said to my host ‘this doesn’t happen at my other hotels’. ‘Oh’, she replied, ‘this is a rather upmarket hotel’. I replied, ‘then from now on I want the cheap ones’.
Donna Williams, Dip Ed, BA Hons
author, artist, singer-songwriter, screenwriter
http://www.donnawilliams.net
Is it very wrong of me to have a little giggle at this Donna? Only because I do relate to some of this. There is nothing I hate more than having my ‘stuff’ moved from this place to the next without my knowledge. I even go into major panic mode if people appear to be nice and do dishes at my house and then go and put the dishes in the wrong place. That one wrong place makes me re arrange my entire pantry. But unlike you I am not object blind. I am just very anal retentive and love need a lot of structure or I just can’t cope.
I totally understand that too.
my exposure anxiety in the bad old days was so big that I felt invaded if people handled, used or moved things which were MY WORLD, I’d often then yet have to remake them mine but often just dissected the ‘invaded’ item from my world, which made me sad but such was the bad old days when the ‘external world’ and my ‘personal world’ were not allowed to share territory or have approved bridges. I’ve come a long way.
Donna *)
Oh My Goodness!!!
You have just explained why I hate tidying up especially my bedroom, when I neatly put things is drawers or baskets I cannot find them except sometimes by texture, so my clothes are usually on my bed where I can see them untill I become so embarassed i tidy up again and within three days when thing are all over the bed and chair It feels so right but know the habit is so wrong.
No I am not a teenager I am 50 years of age and trying desperately to be “normal” in a family who will not accept my differences, it’s like a life half lived, I think
Thanks heaps for the info
Jennifer
I have drawers which are mesh baskets so I can see what’s in them.
I also prefer kitchen shelves which are open so I can easily navigate the choices as I can’t access them in my head .
I have my kitchen in logical sequence, so if you walk in a circuit you’d come to food, then cooker, with utensils in the draw directly under the cooker and cooking stuff directly under that. Above the cooker in open cupboards are crockery (for serving up). Continuing clockwise are the cups (because the kettle is on the cooker) and next to that is the tea/coffee. Next comes the sink and water, and following that the glasses cupboard (what you put water into).
My bedroom is similar, everything is en route in logical sequence so using it becomes a ‘walk through’.
In the living room we have a ‘doing chair’ which has things put on it that require some kind of action out in the outside world (repairs, replacement, off to charity shop etc).
I learned to set things out like this around my teens, without which I had to rely on copying the action patterns of others.
its tough.
I’m so sorry you haven’t been able to live as yourself, what a strain. I hope you can show those who care about you the article so they can help you set up systems by which you can consistently find, recognise and sequence the use of things in your world.
I have written of meaning blindness in most of my 9 books, especially perhaps Like Colour To The Blind, Autism; An Inside Out Approach and The Jumbled Jigsaw.
Warmly,
Donna Williams
http://www.donnawilliams.net
[…] hope you can show those who care about you the article on meaning blindness and this one so they can help you set up systems by which you can consistently […]
Thanks Donna for sharing this.
Your stories help me understand my son ( 5 ) who has autism.
regards
Nev