Losing Time – Dissociative Identity Disorder and the real time travellers.
Dissociative Identity Disorder was different. It meant that developmentally, you were different. Your brain didn’t work in an integrated way and as a result your personality traits were at risk of remaining equally unintegrated, leaving you shifting sharply between various ‘chunks’ of self till, over time, these become other separately functioning ‘selves’ within the one body. Just like there is fragmented vision, fragmented thinking, and movement, rapid cycling bipolar and impulse control disorders which could amount to fragmentation of sorts, personality can also fragment, or disocciate. We all do this when faced with extreme chronic stress or loss we can’t face. People with DID have done this from a young age and, hence, as adults this lack of integration is almost ‘hard wired’ so its hard for them to not ‘switch’ and to function as ‘one cohesive personality’ and the identity that springs from that. As a result, some are crippled and struggle to function. Others can be prolific and astounding in their range of skills, almost as if they live the lives of three or more people in the space of one day, one week, one month, year or lifetime.
I’m diagnosed with autism but many people have claimed me for the DID camp. Why not? I lived my first twenty-five years as three people- a male (Willie), a female (Carol) and me (Donna). There’s got to be more than a little possibility there. And certainly I wouldn’t be the first autistic multiple because I’ve already heard from a number of others on the autistic spectrum.
‘How would you define autism?’ one of her selves asks me before adding that we all seem to have bits of autism.
‘We all have bits of lots of things’, I reply, but a bit of illness doesn’t make a physical breakdown, a period of emotional distress doesn’t make an emotional breakdown, being temporarily mentally messed up doesn’t amount to a mental breakdown and a few quirks and poor processing moments doesn’t amount to a developmental breakdown either. I tell her that Autism is a kind of developmental breakdown in infancy and that after that its a long climb to get development on track. She can relate.
Multiples can relate to developmental disabilities and they may additionally be autistic. The two conditions share a remarkable number of features in common. Being multiple means never knowing what your day will bring. It means living in the moment.
Being multiple may mean being a serious logical person one moment, a comic doing characterisations the next and then a socially anxious emotional self struggling to string a sense together for a stranger across the table.
I’m far more ‘one person’ than I ever was. I think of the ‘us’, the ‘he’ and the ‘she’ collectively now as an ‘I’. I lose time, sure, but I’m a self employed artist and writer. Aren’t we meant to lose time? And after all isn’t time just a mental construct measured by our bodies? Then what happens if the mental formatting or the ownership of the body keeps shifting? Does time shift or disappear more easily? Certainly Multiples may be the closest thing we have yet to cloning ourselves or perceptual time travel.
And this intriguing woman across the room smiles at me with an enormous shyness and smiling eyes, running the fingers through her hair and suddenly she seems about six years old. We used to accept these eccentricities. Now we label them.
I remind her as I leave, “a patchwork quilt is still one quilt”.
I leave knowing each step is in the moment and that sooner or later, one of me will end up back home in time for tea,… in time.
My husband said he loved me. ‘Which one?’ I asked a few years back. All of them, he replied.
Donna Williams *)
http://www.donnawilliams.net/
That’s pretty amazing, Donna.
I like what you wrote about multiples and autism.
And the picture is lovely too.
Yep, time is so a mental construct! And so is the idea of one self (I think).
Love your saying about the patchwork quilt. It’s up there with the labels and jam jars I think.
I may have got lots of people reading your blog. Have I started trouble? You chose to be a public person …
Hi dear Bronwyn,
you are right, I’m quite a social phobe but I choose to be public (ironic, I know). Fact is being an artist, writer, musician, is about being solitary 🙂 the downside is you have to be public in order to survive in it as one’s ‘work’.
I can feel a blog coming on….
🙂 Donna Williams *)
did Willie and Carol let you do things without you realising it was YOU doing it? This is the topic of EA………..exposure anxiety. Or was the scenario different, concerning Willie and Carol?
I command myself in the third person as Ivan, when I have to do things quickly or get motivated………or when I’m afraid of something I mutter to myself Ivan it’s okay……….or when I am sad………..case in point…….yesterday I had spent the afternoon and evening with friends……..when the lady friend came into my apartment while her boyfriend waited in the car……I clung to her………looked up at her………cried and said……….don’t leave Ivan……….
An aside. Ivan, it’s 1:22 am, wake up time is 7:20………..go to bed!!!
cheers
ai
ooooh, an unintegrated cognition does many things with other departments ‘off line’. People in shock do amazing things, far beyond what they can do in usual consciousness. People with bipolar do things in manic states they couldn’t dream of in level or depressive ones. People with Exposure Anxiety have to, as a matter of survival and functioning, tune out awareness in order to get ability out as ‘other’.
Life is never one dimensional.
However it works with you and your selves, may you collectively have a fuller life because of it. Sometimes freedom is the gaps we grab between the bars of a cage.
🙂 Donna *)
Donna,
I have recently been diagnosed with a bunch of things. My newest diagnosies are the following: Mixed Personality disorder, Bordnerline personality disorder, and PTSD. the doctor who assessed me also said that i had traits of DID – but he never really explained which ones… i’m assuming it’s because i have about 3 other personalities that do come out from time to time to help me cope when i am in extreme stress. I also have asperger’s syndrome. I find it very confusing because sometimes i am aware of when the others are out, and sometimes i’m not. I have been losing a lot of time recently, and when i remember, i’m not really remebering, it’s as though someone is telling me (from the inside) I am not really sure what to do about any of this – most people don’t believe me… i also find that the autism plays an interesting role in the PTSD and trying to keep myself in the here and now.
Alice
I find the title ‘mixed personality disorder’ pretty funny as we all have a variety of personality traits. My primary traits include solitary, idiosyncratic, vigilant, artistic, self sacrificing. On a lesser level I have some level of the serious, conscientious, sensitive and devoted. I guess mixed personality disorder is where one has one’s traits in disorder proportions. Sounds like a more informed dx than MPD.
I’ve met people with BPD. I can understand what it is to not want to have a self, to want to disappear or be invisible, but with BPD I understand such people have very poorly defined sense of self and enjoy deep entanglements in which they become the person they fixate on. As a highly individualistic idiosyncratic, a highly autonomous vigilant and an intimacy phobic solitary I can’t think of much more scary than that – not meaning to offend – just closeness is hard enough, but understanding a person’s need for deep entanglement is very hard for me.
Yes, I have known people on the spectrum who have BPD, there’s a bit of separatism toward them, as many people on the spectrum like predictability and personal space and Borderlines struggle to provide either of those for those they get ‘into’. I’m sure its very hard to belong to a group which may sometimes find entanglements way too full on.
I think lack of short term memory is common and mega B complex may help with that for some people. Personally, I have a ‘serial memory’. I can replay anything I’ve been physically involved in. So I can characterise the actions (and sometimes dialogue) of those involved with me, decades after such involvement. I’m sure this makes me more susceptible to PTSD than those without this ‘inability to forget’. It’s apparently a ‘filtering’ fault… my brain just doesn’t throw stuff out very well. But short term memory is really poor… it all seems to go straight to long term.
I was excited to FINALLY find SOMETHING about the combo of DID and autism. You stated that there are many people liek that…where? Where can I find any sites pertaining to such? Also, I have been desiring to know something all my life (I’m 38y/o now) and that is soemthing that I’ve always wondered what it comes from? now i wonder if it is autism. Is anyone here willing to be honest and tell me if they also STILL roll their heads at bedtime (yes, just like tiny babies and children do). I still do this and it drives me crazy why! Also, anyone who knows any informative sites about this i would LOVE it! I havent found a thing in 10 years about adult head-rolling or even that I’m not the only person in this world that does it.
thanks,
tammy
I do know there are some recent books about DID and autism
I have met one woman dx’d with both
autism can come with a range of co-morbids
you can find info on ‘autism fruit salads’ in The Jumbled Jigsaw
there’s also a chapter in there on identity issues
don’t know anything about head rolling
but if it drives you crazy doesn’t sound like a stim
there is a head rolling tic
strange that it only fires at bedtime though.
I have an anxiety dissorder as well as did and ptsd. I have therapy twice a week with counselors.
Every time i go into one she always wants me to name who she’s talking to. I hate that because
I switch so often under stress it’s hard to do. I don’t think she understands how hard it is to stay
in the now. Every once in a while I can stay with it for the whole hour and it’s ok but she puts
me under stress when she demands to know who is there. Why can’t she tell who is there.
I really enjoyed reading this. I have DID, and guess what I do for a living? I teach children with autism. I have definitely seen the link there. There are things somehow I seem to “get” that others do not. There are ways I understand these children that I just could not explain, but over the years I have noted the similarities between DID and autism. I have also found that some of the interventions I use for my students to help them get and stay grounded help me as well. It’s really interesting. Now, when I look into the eyes of my students, there’s this knowledge that somewhere, somehow we share something similar.
Secret Shadows
I just came across this and was amazed. I am a 35 y/o female w/ DID and Asperger’s. I thought it was very uncommon. Glad to know it’s not just me. Do others have sensory issues? Has anyone found anything that helps? I’m in OT, but it doesn’t seem to be doing much…
there’s quite a lot of sensory strategies in Autism; An Inside Out Approach if you can get a hold of a copy.
all the best and glad the article gave you some belonging.
Donna *)
No Tammy… You are not alone. I am DID and HFA and 39. Where are they? is my question too. Hmmm… Well, judging by the replys… I guess many of us are here. I like the expression “Be the change you wish to see in the world”. If there is no site specifically for MPD/HFA and you want one, I suppose someone can create one. Any suggestions Donna. Inside/outside/upsidedown in Donna Blog world?
It’s late. I ate Turkey. It’s thanksgiving here. I can’t be held accountable for my confusion, grin. 🙂
Ah, Happy TG to you.
guess this as good a place to gather as any.
🙂