Sense of thirst and hunger are so taken for granted by most people that its hard to work out how we actually develop these things. Of course we have to have the neurology that makes that possible, primarily things like hypothalmus function which drives the messages and urges to drink or eat, but also perhaps the cerebellum which takes those messages and helps us to process them for meaning. But sense of thirst and hunger can also be a cognitive function, part of an information processing capacity, part of a developmental disability or part of a missed step in early neurological, behavioural, social emotional and communication patterning. My sense of thirst and hunger have probably been gone a long long time, but to understand where they went I have to look at what opportunities they have to develop in the first place. Read the rest of this entry »

Sick of being used, being a doormat, a pleaser, having people leech on you at the expense of developing their own resources, skills or coming to terms with their own lives? Read the rest of this entry »

Don’t fear death…it is just the body evicting its TENANT… we never owned these houses, our biological mechanisms did… we rent space, pay for it with food, drink, warmth in caring for our host… the body Read the rest of this entry »

Finished chemo Dec 2011. Mar 2012 was diagnosed with Central Apnea – brain MRI fine – phew. Inflammatory tenosynovitis made my hands claw up and feet immensely painful to walk… Read the rest of this entry »

For some months now I’ve been peeing vast volumes of urine. Read the rest of this entry »

I was asked to write some words of encouragement to a group of functionally non verbal teens with autism who use their typed communication in their work on a wonderful monthly newsletter produced by a group in Arizona called ACT. This is what I wrote: Read the rest of this entry »

DID YOU OR ANY FAMILY MEMBER OR YOUR GRANDMOTHERS OR GREAT GRANDMOTHERS HAVE ARTERIES OR ORGANS SPONTANEOUSLY RUPTURE?…. Read the rest of this entry »

ALIEN EXPERIENCE

Bored that I am with my boring little world
If I created fantasticorium, a little less snorelorium
I might have met with the creatures from another galaxy
and because I was so important and so interesting,
they beamed me up, abducting me
and their space ship was amazing, more than you will ever know
for only I was to be taken where the special people go.
But when I got to the door of the spaceship I was made to step aside
For the door was too small for my head, so I couldn’t get inside.

by Donna Williams
http://www.donnawilliams.net/weirdoslikeme.0.html

Most people associated with the autism rights or autistic cultural movements have no idea what it was like at the start…

Jim Sinclair reminds us:
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The movement and travel and physicality of sound was experienced as textures and movement, and in the painting the characters simply give the context…. I love sound, as a muso, singer, but equally spent my first 10 years 90% meaning deaf… so sound was purely patterns, movement, variations… later it had pragmatic purpose, associated meanings… but I’m blessed to have known both planets and this pic captures that journey for me. Read the rest of this entry »