Autistic achievements – Donna Williams, newly qualified expert bath runner.
This morning I ran a bath. I then announced to my husband Chris that I could now run baths.
I’m 43.
I’ve been trying to run baths for 28 years.
I flood them, run them without the plug, run them cold, run the boiling, get in at the wrong time (ouch), forget them till they’re stone cold.
I’m sure this is familiar to all of you.
But imagine this is 80-90% of every bath you ever ran.
Its very hard to maintain confidence and keep trying.
So this time I waited till I had ran 3 months of baths which actually worked!
Then I was ready to say, yes, I can run a bath.
In childhood I got into the bath when made to.
At about age 9 I was made to bath with my infant brother.
That taught me about having bodies (because I could see objectively he was a little person in the bath) about soap and washing but I couldn’t work out that I had a whole body so I’d only rub some soap on one part or another.
Then I learned my body was like a road map and ran the soap all along the lines.
When I was about 11, I went to my cousins’ house and they played in the bath and that taught me having a bath could actually be fun and you could even laugh in the bath (now there was a novel concept) and I got into shampoo (and drinking it), bubbles (filled the WHOLE room with these once… I think it was shampoo in the bath) and then got into the bath in my clothes, washed my clothes then took them off to wash the body underneath (made sense to me but I couldn’t tell anyone what I was doing so it just seemed odd to them).
Then I realised the bath could be the one-stop-shop so I got in in my clothes, peed in them, washed the clothes, washed me then let the water out (yes, pretty gross but it was innovative and toilets do involve peeing then letting the water go so you might realise it was actually rather logical to use the bath in this inventive adapted manner but not really in keeping with the rules of the world – which I had no idea of and valued far more highly my individuality, autonomy and solitude).
Then came my teens and I learned to use the shower. Lots of getting burned, lots of flooding, lots of leaving the shower running for hours after leaving it, lots of people yelling. I learned to associate baths and showers with people yelling and being called stupid.
I kept trying.
I was assisted to leave my family’s house (they had more challenges than me) in my teens at 15, and living alone was big time chaos as you can imagine.
The details are in Nobody Nowhere and in fact my bath sagas are mentioned in many of my books, but regarding baths we are talking major flooding, weekly if not daily.
We are talking soggy neighbors ceiling, we are talking water through the entire flat, we are talking lots of mess and shouting.
I reverted to a wash cloth and a basin of water, it was safer.
Then living with men (this was the version of care in the community for folks like me with few living skills and no professional or family support) meant I could get into their bath, their shower.
So at least I’d mastered washing!
But I so wanted to really ‘get this’.
So I kept trying and I taught myself to get out of a boiling bath in my 30s and used a wall poster I made to sequence the running of a bath (when the plug goes in, the regulation of temperature, which order to put the body in).
But still the attention span and meaning blindness thing kept me flooding everything (forgot what the bath WAS or the noise).
So finally I started using a timer.
But I kept walking off from the timer!
I blocked the bathroom door so I couldn’t leave… that worked for a while… like an imprisoned cat…
I still forgot why I was there.
I got a louder timer with an alarm.
Then I progressed to carrying it with me via a rule that I was never allowed to leave a set timer without it coming with me.
Finally, finally, FINALLY, I can run baths.
I’m now going for one.
The moral is, even with half a brain, you can probably master something eventually if you keep trying new ways to counter the whole gamut of challenges which are obstacles to the activity.
🙂 Donna Williams
http://www.donnawilliams.net
autistic author of 9 books in the field of autism
newly qualified expert bath runner
🙂 Well Done, Donna! Enjoy !
Donna you are my hero! I work with children who have autism using music therapy. I’m reading your book and it has given me such insight. Thankyou so much for sharing yourself.
thank you Donna for this refreshing story. I’ve read Nobody Nowhere and sobody somewhere some years ago and loved it. You have a great talent to tell a story, and make a mundane subject such as running a bath into a fabulous, humorour little piece. thanks again, kind regards, ola
Congratulations Donna! I love your music, your books, your art, and your insights. You encourage me and remind me that there is always a way to conquer our challenges.
Hello Donna
I have waited a very long time to get to know you. I first heard about you when a radio program I enjoyed reviewed your book, Nobody Nowhere.
I have waited even longer to get to know me.
I am very pleased that I can write and say “Hello” to you and tell you that I have a lot of trouble with many things that other people just seem to know so easily too.
You have a great sense of humour and you made me smile…thank you!
I have a whole lot of work to do to learn about me, which I am finally getting around to.
I am finally going to buy that book that all those years ago I heard about.
How excited I am to learn that you have written many more! I have a lot of reading to catch up on.
I loved that entry, Donna. Congratulations!! Everything you write inspires me because i relate so much to this burning passion for life that carries you proudly through each minute of your life! The strength of your will continue to inspire anyone who may happen upon your words, i assure you.
-Also, on a related note, i saw this excellent Chinese film called “The Bath” and it explained how people these days do not take baths as often because they do not have the time. People are so busy these days and obsessed with practicality that they overlook the sheer joy one feels when relaxing in a nice, hot bath each night to calm their senses. I should definitely start doing that! I haven’t taken a bath since i was very young.
Once again, that was an awesome entry. Thank you so much for that.
Hi Donna,
Congratulations and thanks so much for sharing experiences on your blog. I’ve got an interview for a job to work with young autistic people teaching horticulture and animal husbandry. Your wesite and blog have given me great insight and have also shown me how much I have to learn…
Looking forward to reading your books,
Thanks again! Mim x
Hello Donna
Thank you for sharing this with us. I was searching the Internet to find the place where I could purchase the JAM Jar (1995) documentary programme. I came across your website and this blog. This is absolutely brilliant; your story is so refreshing and inspirational. I am now looking not only for the documentary program but also for your book. Let me know where I can purchase them.
This is absolutely brilliant
Thank You
Gosia
Hi Gosia,
Jam Jar was produced by Fresh Film and directed by Simon Everson. You might try emailing the producer, Charlie Stuart through his website http://www.freshfilm.co.uk
🙂 Donna Williams
http://www.donnawilliams.net
Hi Donna,
…Yes it’s the same Spencer you met at the Orange County assembly thingamabobbit a couple weeks ago. Anyway, interesting story! Baths never really bothered me in the least but showers were a whole different story. Nowadays, I usually prefer to take showers ‘cuz it’s easier to wash myself that way, but when I was about 11 I hated showers. This was because I hated holding my breath underwater; it felt like I was going to die (sorry to be so graphic here, but that’s really how it felt to me 🙁 )
Thanx 4 the story ;)!!
Spencer
Hi Spencer, glad you could make it to Orange County. I went through great fuss about showers for a while… didn’t like water falling on my head… then no problem… then took up the same fuss again for a time… still a bit fussy with it but my practicality is allowed to dominate such silliness.
Allowing projected fears to dominate functioning is a sign we are forgetting it is OUR job to tame them. Many of us run from fear like we’re being chased by ghosts and don’t realise its our job to talk sense to ourselves emotionally, to check the real realities over the emotional ones, to find a practical side of ourselves if we can, to give ourselves strong boundaries (and if nobody modeled those how can we) and help bring ourselves up to be the boss of fear not the other way around.
Fact is, those of us who are addicted to adrenaline stare too hard and long into the face of fear (others are attracted to violence in a similar way – self directed or otherwise – both set off high adrenaline) and habits are hard to break, especially when our nervous system gets hooked on the arousal… then even if WE- the person- hates it- our chemistry keeps driving us back for it… and driving us nuts doing so!
but life is a dance.
nobody said our partner wouldn’t step constantly on our toes.
🙂 Donna Williams
http://www.donnawilliams.net
“but life is a dance.
nobody said our partner wouldn’t step constantly on our toes.”
Well said!! : )
Félicitations pour cet exploit. Je n’ai pas le plaisir de vous connaître, mais votre livre a suscité chez moi un étrange sentiment de proximité. A bien des égards, votre récit est aussi le mien. La solitude est notre parabole.
Noel Joyeaux, Emmanuel,
Je ne parle pas le Francaise tres bon, mais j’ai comprende votre lettre.
C’est si bon pour aver quelcun passer ici avec le langue belle des Francaise.
🙂
Donna *)
[…] DONNA: I care for people and to me children are just people, small people. But I struggle to tell what time of day it is, sometimes which day it is. I’ve mastered running a bath two years ago (see my article on Expert Bath Runner) but I’m still working on the fire part of ‘fire and flood’ so cooking is still a challenge. Can’t see kids in all that, and as a solitary I’d have locked myself in the cupboard with headphones on, I’m sure. So hats off to you with two children. I couldn’t do it. You have a single just being released. What was the inspiration behind it and who does it benefit? […]
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