I was 9-11 years old when I progressively went from 90% meaning deaf and predominantly stored phrases, TV scripts and echolalia to being only 50% meaning deaf and finally striving to string simple novel sentences together. By age 11 I could construct slow, klunky simple sentences (and still also had fluent, expressive echolalia), by age 12 I could do long litanies at people and was developing simple conversing skills. By 18 I had learned to suppress much of my echolalia, keeping my ‘self chatter’ for when I was alone. So how did this happen? Read the rest of this entry »
People are commonly afraid of death, their own and that of those they love, sometimes of the concept itself. By the age of 5 I had already encountered loss, extreme life threatening events and actual death on a number of levels at a very young age. Read the rest of this entry »
The ‘I am autism‘ trend is narrow, ignorant and passé. The stalkers and trolls and obsessed are frankly frightening people who feel that those who don’t identify the entirety of themselves with being ‘an autistic‘ (some actually feel it is a crime against THEM if anyone publicly doesn’t identify this way or address them and ‘theirs’ solely in terms of these politics). The ‘we autistics’ is so disrespectful to the entirety of any one of us by making irrelevant the vastness of what makes each of us who we are that I hope we can all get over that ignorant and passé trend too. Read the rest of this entry »
There’s a teacher in this picture, front row, fourth from the left in the red top. It’s a picture of teachers at Thornbury Primary School in 1978, and she is familiar to me. I look at the picture and I remember a hero who rescued a young autistic girl. That girl was me. Read the rest of this entry »
When I was in high school there were some girls who sought to have their dress an inch above their knickers. I remember one in my class with whom boys would engage sexually with her at the back of the class. It disrespected the learning environment because the behaviour of all involved was making it a brothel and a joke so nobody could learn in there. Read the rest of this entry »
If you think FASD is not relevant to ‘good mothers‘ of children with autism, take this in:
It has been found that no level of alcohol is safe during pregnancy. Up to 50% of women are drinking alcohol in the first weeks before they realise they are pregnant and commonly many doctors are still suggesting they can drink up to a glass of wine a day.
Binge drinking impact on father’s sperm has also been implicated in FASD.
80% of those with FASD will ultimately be diagnosed on the autism spectrum.
If the mother has no public record of her drinking, most pediatricians will never suspect and the child themselves will almost never know they have FASD.
HOW MANY TRUMANS DO WE STILL NEED?
Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder. Multiple sclerosis (MS) is a demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. So why would EDS have a 10 fold incidence of MS compared with the general population? Read the rest of this entry »
- An autistic journey in acquiring functional verbal communication – by ‘Donna Williams’
3:25 am, August 25, 2016
- arts and ARTism
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- ehlers danlos syndrome
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