Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder. Multiple sclerosis (MS) is a demyelinating disease in which the insulating covers of nerve cells in the brain and spinal cord are damaged. So why would EDS have a 10 fold incidence of MS compared with the general population? Read the rest of this entry »
Things are not merely what they seem.
They can be gateways to other times, other places
Pick up an object…. yes, right now….
now close your eyes… now let your mind forget WHAT it is… tune in ONLY to its SENSORY ASPECTS, handle it, tap it, smell it, rub its surface…
what does it evoke in your memory….
where does the pure sensory experience immediately take you.
then list in the comments below:
a) what the object was
b) where the sensory experience it took you
Polly Samuel (aka 'Donna Williams') Author, artist, consultant and presenter. http://www.donnawilliams.net I acknowledge Aboriginal and Torres Strait Islander people as the Traditional Owners of this country throughout Australia, and their connection to land and community.
Functional neurological symptom (FNS) disorder effects around 0.5% of the population. Not common but more common than you’d think. It can manifest as a range of neurological conditions but blood tests and brain scans can never confirm the presenting neurological conditions.
I ALWAYS think stuff is ‘in my head’. Its always my first question… is this in my head? And it SHOULD be our first question… especially if we are from trauma…. especially if we have PTSD or any collection of dissociate disorder.
Following severe autonomic dysfunction during chemo for breast cancer (go figure), I was diagnosed with Ehlers Danlos Syndrome (EDS). EDS on the list of Alternative Diagnoses to FNS. The great grandmother did die from uterine rupture, cousins did survive uterine rupture, brain aneurysms, spleen rupture, all of which occur in EDSIV (which I’m dx’d with) so I think… yeah that I can trust that diagnosis.
The muscle spasm episodes were episodic but continual. The Osteo would sort them every 2 months just so another collection could create some new work for them. Sprained ribs? Large muscle groups in spasm? Diaphragm in spasm making it hard to breath? What on earth was I doing? I blamed the Ehlers Danlos Syndrome. Could have been in my head, but these are actually usual in EDS… but also in MS. Read the rest of this entry »
Beware overcaring for it can promote Dependent Personality Disorder (DPD) in a disabled child and they can self injure, self endanger, self deprive to compulsively monopolise the carer out of an pathologically exaggerated belief in their their own incapacity and vulnerability. DPD co-occurs in children who have had Separation Anxiety Disorder and Avoidant Personality Disorder. However, the compulsion of those with DPD to control the carer through progressive helplessness/loss of skills is, by far the most disabling of the three commonly co-occurring conditions. There are solutions to turning around co-occurring Dependent Personality Disorder in children deemed ‘Severely Autistic‘ and where it is turned around the child will still be autistic but generally not nearly as ‘Severely Autistic’ as their Dependent Personality Disorder was presenting them to be.
Speak not of the luxury of choice
of the choice to indulge
to decide, to rest, to sleep
for I can only dream of such things
once again devoured by invisible clouds
of sedation uninvited
like the eye of a hurricane
pulled down through the pillow
into REM sleep in the blink of an eye
sleep’s addictive call
its inarguable claim
of body, of mind
stealing luxury of choice
with one cast of its wand
in the clutching grip
of a hand called narcolepsy
When we think about autism related developmental, behavioural and learning challenges we usually think about sensory perceptual disorders, sensory integration issues or hypersensitivities, about gut, immune or metabolic disorders, dyspraxia, speech and communication disorders or mood, anxiety or compulsive disorders. But personality and identity may figure equally as much for particular people in determining their reaction to their autism.
We all have around 4-6 of Oldham’s 16 recognised personality traits – Ptypes.
Each of these come with their own unique motivation and distress patterns meaning that different personalities will respond very differently in how they adapt to an ongoing sources of challenge, frustration, isolation or trauma.
Certain conditions can hone or inhibit particular personality traits, pushing these into the range for Personality Disorders. Read the rest of this entry »
Religion makes some people feel better, stronger, some feel too weak, lost, helpless without someone with superpowers having the ultimate control, a safety net Read the rest of this entry »
The Dandenong Ranges is home to so much iconic Indigenous plants and animals and so it attracted masses of tourists every year to its national parks, to Puffing Billy, and other iconic tourist magnets. But what if you are a tourist or visitor from overseas, wanting to experience Indigenous Australian culture up here in the Dandenongs? Read the rest of this entry »
- arts and ARTism
- autism politics
- Donna Williams
- Donna's Art Students
- eating out
- ehlers danlos syndrome
- human rights
- out and about