The World’s Greatest Shave – a post chemo perspective
a) Shaving off your hair in a fundraising competition for the biggest fundraiser has no relationship whatsoever to how it emotionally feels to those going through chemo or what happens to hair when it falls out from the roots, nor anything at all like how it grows back after chemo.
b) The World’s Greatest Shave unintentionally spreads a stereotype that the toughest thing about chemo is a bald head (are you F*&^%$#@ kidding try having your brain, bowel, bladder etc all screw up on you because of chemo side effects not to mention collapsed veins, thrush everywhere, constant mouth ulcers, fatigue and that it is ALL body hair and nails and skin and all your blood cells that are damaged) and this means those struggling to work during chemo have sometimes been met with ‘so what, so you lost some hair, get over it’.
c) with all the ‘be brave and shave’ how many of those lucky enough to have the choice actually came along to support their pal at the chemo ward? How many friends shaved their own heads in support of a pal who was feeling ashamed, reduced, ravaged by cancer without thought for the fundraising kudos? It’s all exciting to mimic the baldness of chemo as their own bravery and excitement but its really odd to someone who has been through the real deal.
Would we put on ‘black face’ to raise money for African AIDS orphans? How about non-autistic people can stim autistically all day to raise money for autism?
Sure, it raises money. We have a poster here: sausage sizzle $2, bouncy castle $5, face painting $6, head shave $10… so its an amusement park novelty, plus of course the ‘brave’ shaver gets a great ego massage full of fund raising kudos… how sweet 😉 . But I can tell you that when you are really bald from chemo its not an ‘achievement’, its hard to feel equal (not to mention you know all your hair is gone from all your body and likely you have had your tits cut off and feel sick) so all the glitz and ‘fun’ of it, sort of feels weird.
I just say, well if a bunch of white people blackfaced to raise money for people in Africa would I join them. F&^$ off! What ever happened to a good old fund raising walk? Guess people can’t enjoy the surprise and shock of their friends at the exciting novelty of seeing them … drum roll…. insert shock, insert horror…. yes… ‘tragically BALD’ (groan) and all (insert martyr flag) in self sacrifice (insert puke) for the victims (insert eye roll) of cancer (insert alienation).
Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.donnawilliams.net
I acknowledge Aboriginal and Torres Strait Islander people as the Traditional Owners of this country throughout Australia, and their connection to land and community.
Well said – as a two-time cancer survivor who has been through hell and back (and still dealing with the disabling late effects) – I TOTALLY AGREE!!!
So glad you kicked its butt twice. My cousin is 43 and has done three rounds with it since age 22. I’m so impressed by her grit. I was diagnosed with dysautonomia and central apnea following my chemo so had an MRI with contrast last week – glad to say results were all good – yay!! But of course if they weren’t I’d have likely ended up bald again (if I ever do again I’ll do henna 🙂 But in any case those who do the shave because they feel its daring, as a martyr flag or then gad about hiding their ‘shameful secret’ of what is essentially a buzz cut and nothing like a shiny bald from the roots chemo head, well, sorry, but I’d prefer they just donate what they WOULD HAVE without emulating those who are truly going through it. I do, however, absolutely make an exception in the case of kids, siblings, best pals etc who do the shave in solidarity with none of the martyr flags, none of the ‘let’s play chemo’, none of the ‘look, I’m chemo Barbie’. Anyway, as you know, chemo Barbie has a yellow jaundiced complexion, so I say if you want to play chemo Barbie, best co-ordinate your new buzz cut with some yellow foundation Honey 😉