Polly's pages (aka 'Donna Williams')

Ever the arty Autie

Realistic hopes about metastatic cancer are grounded in context

October9

Polly and Chris Samuel I was diagnosed mid September 2016 with metastatic breast cancer to the liver (and spine). Statistically the usual life expectancy for metastases (mets) to the liver is 6mths-3yrs, the former being extensive/innumerable tumors to liver, the later, a few. I have extensive/innumerable tumors to liver. We’re doing a great job shrinking them, but this will only last around 10 months when this drug is known to stop working because the cancer cells become resistant to it. Read the rest of this entry »

A little 101 on metastatic breast cancer

September26

Memory by 'Donna Williams' A little 101 on metastatic breast cancer… Read the rest of this entry »

How An Atheist Dies

September26

Donna Williams aged 12 At age 13 I had an NDE, a Near Death Experience. I was a suicidal 13 year old, I ‘died’ alone in my attic room from alcohol poisoning inhaling metholated spirits because I was too terrified to sleep in there, because my soul was weary, because I felt there was no hope and didn’t have any reason to live… and as I felt pulled heavily into the mattress my spirit lifted out of my body into a warmth of pure light as all I was dispersed onto that light… so had this same experience, but my body called me back… it wasn’t my time. I never feared death since. Read the rest of this entry »

You’re dying… so why are you on Facebook?

September25

Cabbage Patch by 'Donna Williams' Less than a month ago I learned by breast cancer returned, that my liver had innumerable tumors and one in my spine. Most people imagine bucket lists, but I did a spring clean, celebrated the little things & ordered online what I needed for my new lifestyle of weekly chemo for the rest of my life (chemo for secondary breast cancer is to extend months, hopefully a year or even sometimes years). I focused on laughing, living, loving and normalising this new direction for me, my husband, our cats, our friends. Read the rest of this entry »

Babysitting the bowel in Vascular Ehlers Danlos Syndrome IV

November21

Hanging in The Balance by Donna Williams My father died from bowel cancer in his late 50s. I survived breast cancer in my late 40s and of course this means I’m a reasonable candidate sooner or later for possible bowel cancer to give me a run for my money. As such I had to have a colonoscopy every year to ensure I kept this bogie man away. Read the rest of this entry »

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Autism and Hypoventilation

June19

donna williams aged 0.4 months old I was born in 1963 to an alcoholic mother who became sectioned under the mental health act when I was 3. I was born with Ehlers Danlos Syndrome (EDS) which is a collagen disorder thought associated with high functioning autism. Collagen plays a part in immune regulation and brain connectivity. I was immune deficient since 6 months old and had IgE allergies to wheat and legumes which would have been present since infancy. Then a lot happened when I was two and a half. Read the rest of this entry »

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