Polly's pages (aka 'Donna Williams')

Ever the arty Autie

A little 101 on metastatic breast cancer

September26

Memory by 'Donna Williams' A little 101 on metastatic breast cancer… Read the rest of this entry »

How An Atheist Dies

September26

Donna Williams aged 12 At age 13 I had an NDE, a Near Death Experience. I was a suicidal 13 year old, I ‘died’ alone in my attic room from alcohol poisoning inhaling metholated spirits because I was too terrified to sleep in there, because my soul was weary, because I felt there was no hope and didn’t have any reason to live… and as I felt pulled heavily into the mattress my spirit lifted out of my body into a warmth of pure light as all I was dispersed onto that light… so had this same experience, but my body called me back… it wasn’t my time. I never feared death since. Read the rest of this entry »

You’re dying… so why are you on Facebook?

September25

Cabbage Patch by 'Donna Williams' Less than a month ago I learned by breast cancer returned, that my liver had innumerable tumors and one in my spine. Most people imagine bucket lists, but I did a spring clean, celebrated the little things & ordered online what I needed for my new lifestyle of weekly chemo for the rest of my life (chemo for secondary breast cancer is to extend months, hopefully a year or even sometimes years). I focused on laughing, living, loving and normalising this new direction for me, my husband, our cats, our friends. Read the rest of this entry »

Babysitting the bowel in Vascular Ehlers Danlos Syndrome IV

November21

Hanging in The Balance by Donna Williams My father died from bowel cancer in his late 50s. I survived breast cancer in my late 40s and of course this means I’m a reasonable candidate sooner or later for possible bowel cancer to give me a run for my money. As such I had to have a colonoscopy every year to ensure I kept this bogie man away. Read the rest of this entry »

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Autism and Hypoventilation

June19

donna williams aged 0.4 months old I was born in 1963 to an alcoholic mother who became sectioned under the mental health act when I was 3. I was born with Ehlers Danlos Syndrome (EDS) which is a collagen disorder thought associated with high functioning autism. Collagen plays a part in immune regulation and brain connectivity. I was immune deficient since 6 months old and had IgE allergies to wheat and legumes which would have been present since infancy. Then a lot happened when I was two and a half. Read the rest of this entry »

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