WHAT DOES IT MEAN?
Central hypoventilation means your brain keeps forgetting to keep you breathing. See, we have this thing called a ‘respiratory drive’ and this makes us keep breathing. This is why we don’t easily ‘just die’, because there are two things keep us alive; a beating heart and a respiratory drive. If either of those fail partially then we will have problems. Read the rest of this entry »
SOME STATISTICS
Suffocation abuse is perpetrated by carers with Factitious Disorder Imposed on Another (previously called Munchausen’s Syndrome By Proxy, or MSBP), 76%-98% of whom are the mothers of those they abuse. “In a survey of 51 clinics treating infant apnea, 54 of 20,090 children (0.27% or 1 in 200 of these children) had been subjected to MSBP”. Read the rest of this entry »
Most people love a big relaxing candlelit bath. Put your head back under the water and give your ears a good soak. Maybe even have a snooze. Well, its not so straightforward with the hypoventilation disorder of Ondine’s Curse. Read the rest of this entry »
ONDINE’S CURSE by Donna Williams Read the rest of this entry »
Recent studies in reputable medical journals have linked Autism to seemingly farfetched things like being born to mothers with pre eclampsia, being born prematurely, being born to older fathers, being born to smokers, being born by cesarean, being circumcised under the age of 5. Read the rest of this entry »
VPAP S9 Auto Adapt
I was born in 1963 to an alcoholic mother who became sectioned under the mental health act when I was 3. I was born with Ehlers Danlos Syndrome (EDS) which is a collagen disorder thought associated with high functioning autism. Collagen plays a part in immune regulation and brain connectivity. I was immune deficient since 6 months old and had IgE allergies to wheat and legumes which would have been present since infancy. Then a lot happened when I was two and a half. Read the rest of this entry »
We all get earworms. I do too. But this is rather different to having the equivalent of a radio program in your head. I feel I’ve had my own invisible iPod all my life because I have always had music starting up in my head, including to the degree it got in the way of learning or processing external sounds… or perhaps it filled that gap because I couldn’t. Read the rest of this entry »
Since the development of iPads, many functionally non verbal people with autism have shown themselves able to express themselves independently. Others, however, have shown little interest in using an isolated finger to type or even point out icons or swipe pages on an iPad. When the same person sits stimming on their finger waggling, it is easy for some people to presume or imagine that person is to intellectually impaired they just don’t have the IQ to understand what the device is for, how to use it for themselves or why they might want to. Read the rest of this entry »
If you believe that Autism is NOT a ‘Fruit Salad’ of a range of other conditions presenting ‘as the autism’, then look through this list of ‘Autism Fruit Salad’ at all the things that can be taken as ‘just parts of The Autism’. Read the rest of this entry »
Donna Williams is an Australian born adult with autism who was assessed as psychotic at the age of 2 in 1965, labelled disturbed in the 1970s and diagnosed as autistic in her 20s in 1991.
She acquired functional speech in late childhood and went on to become a qualified teacher with an honors degree in Sociology and a degree in Linguistics. She is the author of two international bestselling autobiographies and has 10 published books including 4 text books widely used in autism education and two books of poetry and prose.
As a screenwriter, she wrote the screenplay to “Nobody Nowhere”, the first book in her 4 book autobiographical series. That screenplay is currently under option to become a Hollywood film. She is an professional artist, singer-songwriter and published poet as well as a world renowned public speaker on autism now living with her husband in Australia. In her presentations she draws not only on her own experiences but on international experience as a professional autism consultant since 1996.
Donna’s is a speaker in demand around the world due to her unique perspective and ability to share her feelings and experiences on a very personal level. More information about her and her life’s work can be found on her website at http://www.donnawilliams.net .