Don’t fear death…it is just the body evicting its TENANT… we never owned these houses, our biological mechanisms did… we rent space, pay for it with food, drink, warmth in caring for our host… the body Read the rest of this entry »
Finished chemo Dec 2011. Mar 2012 was diagnosed with Central Apnea – brain MRI fine – phew. Inflammatory tenosynovitis made my hands claw up and feet immensely painful to walk… Read the rest of this entry »
For some months now I’ve been peeing vast volumes of urine. Read the rest of this entry »
DID YOU OR ANY FAMILY MEMBER OR YOUR GRANDMOTHERS OR GREAT GRANDMOTHERS HAVE ARTERIES OR ORGANS SPONTANEOUSLY RUPTURE?…. Read the rest of this entry »
Every time I think, hey I feel fine, I’ll get back to work, I’ll, I’ll, oh damn, another infection… third one this year (the other two were Staph.. a new adventure)… I say, its ok, you are ancient in terms of primary immune deficiencies… Read the rest of this entry »
Tell people you keep bursting veins in your fingers and seems everyone has a story. Similar, however, isn’t same, so here, in detail is what happens with mine and my cousin’s. Read the rest of this entry »
Being 49 years old and just diagnosed with EDS IV (vascular type) I ask myself how I got this far with a condition that has an average life expectancy of 40 years old and a median life expectancy of 48. I have certainly had a lifetime of health issues but I haven’t had the brain aneurysms or uterus rupture of my cousins nor yet had the diverticulitis of my brother. Did I do anything differently to others growing up with EDS IV? Here’s my views on what I may have done right, by choice, by default, by accident. Read the rest of this entry »
Glue me together and glue me well
or at least make me youthful so no-one could tell Read the rest of this entry »
DIAGNOSIS
In 2012 I saw a Clinical Pharmacologist/vascular specialist about my already diagnosed Dysautonomia. As a result I got diagnosed with Ehlers-Danlos type 4… the vascular type. Read the rest of this entry »
Chris insisted I blog about our icecream tonight… and it was scrummy. Read the rest of this entry »
Donna Williams is an Australian born adult with autism who was assessed as psychotic at the age of 2 in 1965, labelled disturbed in the 1970s and diagnosed as autistic in her 20s in 1991.
She acquired functional speech in late childhood and went on to become a qualified teacher with an honors degree in Sociology and a degree in Linguistics. She is the author of two international bestselling autobiographies and has 10 published books including 4 text books widely used in autism education and two books of poetry and prose.
As a screenwriter, she wrote the screenplay to “Nobody Nowhere”, the first book in her 4 book autobiographical series. That screenplay is currently under option to become a Hollywood film. She is an professional artist, singer-songwriter and published poet as well as a world renowned public speaker on autism now living with her husband in Australia. In her presentations she draws not only on her own experiences but on international experience as a professional autism consultant since 1996.
Donna’s is a speaker in demand around the world due to her unique perspective and ability to share her feelings and experiences on a very personal level. More information about her and her life’s work can be found on her website at http://www.donnawilliams.net .