Our desires and wants are influenced by those we’re connected to… so if we are socially disconnected and find we want or desire little/nothing… the solution is to get connected… whether we like it or not… because it will probably, sooner or later, activate us to want and desire something… hmm

Donna Williams, BA Hons, Dip Ed.
Author, artist, singer-songwriter, screenwriter.
Autism consultant and public speaker.
http://www.donnawilliams.net

Every time I think, hey I feel fine, I’ll get back to work, I’ll, I’ll, oh damn, another infection… third one this year (the other two were Staph.. a new adventure)… I say, its ok, you are ancient in terms of primary immune deficiencies… Read the rest of this entry »

Hello Donna,
My name is Tilly and I’m an A-level art student from a UK secondary school called Ruislip High.
While searching through the Internet for inspiration, I came across your website and was completely inspired. Read the rest of this entry »

Tell people you keep bursting veins in your fingers and seems everyone has a story. Similar, however, isn’t same, so here, in detail is what happens with mine and my cousin’s. Read the rest of this entry »

Being 49 years old and just diagnosed with EDS IV (vascular type) I ask myself how I got this far with a condition that has an average life expectancy of 40 years old and a median life expectancy of 48. I have certainly had a lifetime of health issues but I haven’t had the brain aneurysms or uterus rupture of my cousins nor yet had the diverticulitis of my brother. Did I do anything differently to others growing up with EDS IV? Here’s my views on what I may have done right, by choice, by default, by accident. Read the rest of this entry »

Glue me together and glue me well
or at least make me youthful so no-one could tell Read the rest of this entry »

DIAGNOSIS

In 2012 I saw a Clinical Pharmacologist/vascular specialist about my already diagnosed Dysautonomia. As a result I got diagnosed with Ehlers-Danlos type 4… the vascular type. Read the rest of this entry »

Hi ho Silver, away!
Lone Ranger, you were not Read the rest of this entry »

Chris insisted I blog about our icecream tonight… and it was scrummy. Read the rest of this entry »