April27
Every time I think, hey I feel fine, I’ll get back to work, I’ll, I’ll, oh damn, another infection… third one this year (the other two were Staph.. a new adventure)… I say, its ok, you are ancient in terms of primary immune deficiencies… Read the rest of this entry »
January24
Hello Donna,
My name is Tilly and I’m an A-level art student from a UK secondary school called Ruislip High.
While searching through the Internet for inspiration, I came across your website and was completely inspired. Read the rest of this entry »
January22
Tell people you keep bursting veins in your fingers and seems everyone has a story. Similar, however, isn’t same, so here, in detail is what happens with mine and my cousin’s. Read the rest of this entry »
January17
Being 49 years old and just diagnosed with EDS IV (vascular type) I ask myself how I got this far with a condition that has an average life expectancy of 40 years old and a median life expectancy of 48. I have certainly had a lifetime of health issues but I haven’t had the brain aneurysms or uterus rupture of my cousins nor yet had the diverticulitis of my brother. Did I do anything differently to others growing up with EDS IV? Here’s my views on what I may have done right, by choice, by default, by accident. Read the rest of this entry »
January17
Glue me together and glue me well
or at least make me youthful so no-one could tell Read the rest of this entry »
January13
DIAGNOSIS
In 2012 I saw a Clinical Pharmacologist/vascular specialist about my already diagnosed Dysautonomia. As a result I got diagnosed with Ehlers-Danlos type 4… the vascular type. Read the rest of this entry »
November1
Hi ho Silver, away!
Lone Ranger, you were not Read the rest of this entry »
October23
JUDGEMENT DAY by Donna Williams Read the rest of this entry »
October23
REMOTE CONTROL by Donna Williams Read the rest of this entry »