Polly's pages (aka 'Donna Williams')

Ever the arty Autie

Living with Primary Immune Deficiencies

April27

Amidst the pallette by Donna Williams Every time I think, hey I feel fine, I’ll get back to work, I’ll, I’ll, oh damn, another infection… third one this year (the other two were Staph.. a new adventure)… I say, its ok, you are ancient in terms of primary immune deficiencies… Read the rest of this entry »

ARTISM – an interview with art student Tilly Snaith

January24

This Much by Donna Williams Hello Donna,
My name is Tilly and I’m an A-level art student from a UK secondary school called Ruislip High.
While searching through the Internet for inspiration, I came across your website and was completely inspired. Read the rest of this entry »

On going ‘pop’! – Spontaneously bursting finger veins in EDS

January22

burst vein fingerTell people you keep bursting veins in your fingers and seems everyone has a story. Similar, however, isn’t same, so here, in detail is what happens with mine and my cousin’s. Read the rest of this entry »

EDS IV at the age of 49 – what I may have done right

January17

Field of Dreams sml crpd Being 49 years old and just diagnosed with EDS IV (vascular type) I ask myself how I got this far with a condition that has an average life expectancy of 40 years old and a median life expectancy of 48. I have certainly had a lifetime of health issues but I haven’t had the brain aneurysms or uterus rupture of my cousins nor yet had the diverticulitis of my brother. Did I do anything differently to others growing up with EDS IV? Here’s my views on what I may have done right, by choice, by default, by accident. Read the rest of this entry »

Fall Apart Syndrome – a poem about EDS IV

January17

Blown Away by Donna Williams Glue me together and glue me well
or at least make me youthful so no-one could tell Read the rest of this entry »

Coming to terms with Ehlers-Danlos type IV (Vascular type)

January13

Encouragement sml DIAGNOSIS

In 2012 I saw a Clinical Pharmacologist/vascular specialist about my already diagnosed Dysautonomia. As a result I got diagnosed with Ehlers-Danlos type 4… the vascular type. Read the rest of this entry »

Hi Ho Silver, Away….

November1

Hi ho Silver, away!
Lone Ranger, you were not Read the rest of this entry »

Overdoing death

October30

Death Becomes Read the rest of this entry »

Judgement Day

October23

JUDGEMENT DAY by Donna Williams Read the rest of this entry »

Remote Control

October23

REMOTE CONTROL by Donna Williams Read the rest of this entry »

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